We are missing Daddy and Kam, but managed to get into a little routine today. I got up early and spent about 30 minutes blending Owen's gtube feeds for the day, as well as drawing up all his syringes of meds for the day (about 26 total). Then we had to get to Target as soon as they opened so we could avoid the crowds. Owen wore a mask, we had his full tent cover on the stroller and we rushed in and outta there. I think we avoided all the germs we could, but I really needed a phone charger because Kam accidentally took mine home.
We came back to the RMH and relaxed while playing Wii. Owen's legs have been really sore and weak today so he hasn't walked much. We did pack up a little lunch and walk to our backyard at the RMH and set up a little picnic. The weather was perfect and it was nice to just relax outside for a while.
Owen was full of good ideas, which included a 2 hour afternoon nap. Bliss. Early this evening, we headed downstairs for the balloon animal guy to make Owen a heart balloon. Then we headed outside to watch the Firefighters grill up our dinner on their giant fire truck grill. It smelled phenomenal.
Owen got a personal tour of the firetruck and learned all about gaskets, hoses and their equipment. Very cool.
We even let him sit inside the firetruck and check out the captains seat. He wore his mask the whole time, I just took it off for pictures.. I am going to be OCD for a while.
Owen's friend Trey is here from AZ because he has an ASD closure in the cath lab tomorrow at LPCH. It also happens to be his 5th birthday this week, so they joined us for the PA Fire Dept monthly birthday dinner and party.
Trey and his family brought Owen this awesome Dbacks baseball hat... which Owen loves. It was great to see the Mayer family.. I'm so glad you guys came for a visit!
Dinner was yummy and now we are back in our room resting up for an early morning at the hospital. Owen has labs due... which means pokes. :( His immunosuppression meds need a little adjusting to get his levels where they want them to be, so that means we have a few extra lab draws.
It has been a great Sunday and we just finished the day with a face time goodnight call to Daddy and Sis.
2 comments:
Glad you had a great weekend! It is so great seeing Owen smiling and looking so PINK! Saying lots of prayers for an easy, minimal poking day for Owen. {{{HUG}}}
(Sorry for the deleted comment above. I forgot I was still signed in under a friends account that I had been helping with her blog. Oops! :) )
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