I can't say it enough, but Owen is such a superhero. It's unreal. He hasn't complained about a single thing. Asks for his mouth swabs, tells us he's comfortable, he remains calm and communicates well with his medical team. Last night around 10:30pm he woke up and said "night night mom". I told him I was going to go get some sleep and he smiled and mouthed "ok.. I love you." I asked him if he was okay to stay with his nurse and he said "yes" and waved at her to acknowledge her. Then went to sleep. I ran back to the RMH to get a little shut eye and told the nurse to call for anything.
At 2:30am I got a call that he was awake and asking to get his breathing tube out. I came right away and the respiratory therapist was in shock at how sweet Owen was. He wasn't scared at all. He had a little bubble blowing competition with the RT and he was just watching his movie. The RT said, he is not a 5yr old boy, he is a little man!! He was impressed with his mature communication and disposition. That's my boy! :)
Owen blew some bubbles for me, and has been actively coughing as needed. He just smiled at me and said "night night" and told me his central line in his neck is sore. We gave him his next dose of Tylenol and he's sound asleep. They started him on 10 liters of high flow oxygen, but he's down to six. They will decrease that quickly and get him changed into a regular nasal cannula as he's ready.
The nurse is going to pull an IV or two that we aren't using and we'll change his chest dressing. I'm anxious to see his new "Zipper". The surgeons come around early so we'll see about the chest tube drainage, maybe we can pull one of those as well. Overall.. Owen couldn't be doing better. We are going to have a busy post op day 3!
I'll stick around until we get through the ouchies (chest tubes, iv pulling, dressing changes) and then doctor rounds. This mama needs sleep so I am putting Daddy in charge after that for a while. Kam will be a great distraction for Owen today and she will have him moving a little, playing games, ect. I am hoping by around 7 he can start having some clear liquids and by lunch, he can have his first meal.
I am still in awe of my Superhero.
Saturday, July 20, 2013
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18 comments:
Owen, we are all so proud of you! You sure are my "super hero"!
I woke up early thinking about Owen and was so happy to check FB and see your great update. He is a superhero. It sounds like today could brings some good strides. I will continue to keep Owen in my thoughts and prayers.
Carolyn (in Las Vegas)
I tkink Owen is a keeped too. He is one tough little boy. Keep up the good work Owen.
Thank you so much for taking the time to update. Owen has been on my mind and in my prayers. Thank God and the doctors that are guided by Him. Continued prayers for a quick recovery!
Owen is definitely the real Iron Man! Thinking of you all the time. Love to you all and a high five for Owen xx
Owen was made for this- what an amazing kid (and family). You have all been on my mind and in ky prayers constantly this week. I am so happy for Owen! I can't wait to see what he'll do with his life now!
I hopped out of bed and had to check on Owen, First thought of my day! Thank you for updating. Prayers are working!! What a hero. Your a brave, strong, wonderful Mother! It shows. God Bless you.
First task of the day, check this blog. Tears of joy!! Such exciting news. He even looks more alert and awake in this picture. So exciting!!! Lots of love and prayers for SuperOwen and his family.
I'm with some of the above commenters. Checking on Owen was the first thing I did this morning! I have followed his story for about four years, right around the time our son was diagnosed with a CHD (ASD, VSD) (they also share the same local cardiologist). Owen is such a fighter! I greatly appreciate the updates!!! He is most definitely in our thoughts and prayers! Go Owen!!!!
I have often thought, when looking at Owen's pictures that he is an old, wise soul. He understands things that others his age would never get. He has gone through things with such grace and ease. He IS my Superhero! And I hope one day, when he is well, to be able to meet him and give him a hug. Owen -- stay strong. You ARE awesome!!!
Owen you are amazing!!!!! You too mama!!!! So happy to read this mornings post! I will be by to visit little mr amazing on the 5th and I have a sneaky suspicion he will be packing up his room if not already staying at RMH! What a dream come true!!!
Mary
Owen you are so awesome! You are such an amazing little man. I hope someday my heart daughter Raygen can meet you. You are such an inspiration.
Sending you lots of heart hugs. You are truly a heart super hero.
Many prayers from Washington.
Yay!!!! Great news! Still praying for you guys.
Owen looks so pink! I will continue to pray for all of you.equ
Amazing! This is great news!
From a friend of Rudy,
Grace
We are so very happy for Owen! He is such a wonderful little guy! Our prayers are with him and your family!~Joyce (Anneke's mom)
Superhero is right.. Makes me want to cry he is so amazing!!
Mr O, you're IT!!!
Love how he is a boy but a Superhero!!!
Fly high with your donor heart!
(((Hugs))))
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