Owen had another fantastic night. I got to the hospital around 6am and he was already bathed, teeth brushes, bandages changed and ready to start his day! He loves his night nurse and we are happy that she'll be back again tonight. Another night of sleep for me too. :)
The plan for today is to wean off the Milrinone. Take him off the oxygen completely (pictures to come). Start eating like a champ. Getting his gtube feeds back to full nutrition. Switch his Prednisone (steroids) and Cellcept (anti rejection med) from iv to gtube. Then he'll just be getting iv Lasix and he has two more days of ATG (rabbit globulin). Respiratory will be giving him Amphotericin B, an anti fungal breathing treatment later today, just routine and preventative.
Owen's first meal post transplant was a success! Chicken, grapes, ketchup, cranberry juice and water. He is doing great while eating and still struggles a bit with drinking. We've been taking small sips of water and he does great.. but I always have fear of him aspirating post intubation, so we are taking it slow.
We are going to get Owen out of bed a little. Maybe a wagon ride, sitting in the chair. He's still too weak to walk and has very weak core muscle strength. He was a dead weight as I moved in him into the chair last night. PT and OT will be here tomorrow morning to help work on that a little. They said he should be moving out of the ICU by tomorrow or Tuesday. Amazing!!!
Sunday, July 21, 2013
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21 comments:
Awesome!!! It so good to see Mr. Owen doing so well. He has been on mind constantly and we will continue to pray for his recovery. Keep up the great work, Owen! Heart hugs!
Go Owen go!! You are a amazing boy! Mom are are amazing too!! Praying for all of you!
amazing! 4 days after a heart transplant....so impressive!
Wonderful news. Each day brings its own little miracles to celebrate. Keep up that smile, Owen. It's contagious.
Carolyn (in Las Vegas)
Awesome progress! Will they remove his Gtube before discharge, or will he still not be able to totally eat all food by mouth? I bet it will be amazing to see him oxygen free!
Wonderful news! Keep up the good work Owen!! Sending hug and kisses
I just can't get over his great color!!!! Go Owen!
Oh That Smile! Love it. Way to go Owen!!
Unbelievable !!!!
XXO
I love these updates! I am so glad to hear that Owen is doing so well. He looks awesome!! What a cute little guy and so brave. Keep it up Owen!! :)
Owen you are too cute! I love seeing your happy little dace grinning again! Great job eating buddy! Keep up the great work! Praying for another night of rest for you Andrea! {{{HUG}}}
YIPPEE is all I can say!! Keep up the good work Owen...we all love you!
Just look at those pink lips! :) Continuing to pray your sweet boy through! He's a ROCKSTAR!!!
Super Owen!!!
(Super donor family)
(Super Mom, Dad and Sis!!!)
Super Owen!!!
(Super donor family)
(Super Mom, Dad and Sis!!!)
I hope the weaning from oxygen is going smoothly! I can't imagine what that will be like for all of you to transition to not always having that "extra" with you.
Go Owen, go!
Looking for an update before I go to bed. Prayers continue! SO thankful for those that are answered, and for those unspoken needs you may have.
Your one brave boy keep up the good work TIGER !!!! Grrrrrrrr. Smiles. Love from lake Izard MO
Your one brave boy keep up the good work TIGER !!!! Grrrrrrrr. Smiles. Love from lake Izard MO
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