Tonight was scary. Please keep Owen in your prayers.
Owen has been very groggy today. His blood gas levels were great and he was ready to extubate at around 4pm. He was tired most of the day and had heavy eyes. We tried to get him moving a little and coughing up the secretions in his chest, but he was too out of it. He communicated with us all day with his raspy post ventilator voice, it was heartbreaking and very sweet. He sucked on a sponge to hydrate his little mouth and we read a few books together. Respiratory therapists had to suction him a few times and help him get rid of the secretions that he was unable to cough up.
As we were getting ready to head back to the RMH to get some much needed sleep, Owen's sats dropped a little and his blood gas came back with lower PO2. PO2 is the level they look at that measures the levels of oxygen in his blood. The RT did a suction before we left and things were looking better and he was resting comfortably.
We got back to the RMH and I was asleep before my head hit the pillow. At 10:30, Owen's nurse called to tell me his blood gases looked perfect and it was just what I needed to hear to rest my head and get a decent night sleep.
The phone rang at 11:15pm and it was the charge nurse.. she said that Owen's oxygen was dropping into the low 80s and they were reintubating him stat. I rushed back to the CVICU to find a bunch of doctors surrounding my boy and I broke down in tears. Doctors came out one by one to update me, but I just imagined Mr Owen being so scared and I wasn't there. I am always there!!
They let me in right away and he was sedated and had a little paralytic. His PO2 levels were lower than before and the chest xray had come back with the right lung looking hazy. The surgeon came in and checked his chest tubes and did an ultrasound of the lung and said it's not fluid, but a collapsed right lung. This is new for us, but not uncommon.
Owen's lungs are used to a totally different circulation. With his HLHS heart, he had the right ventricle of his heart pumping blood to his body, while the lungs received less oxygenated blood. This is why his 70% oxygen saturations were acceptable with his old heart. Now his body is adjusting to a new heart and his lungs are getting an adequate amount of blood flow.
When the lungs fill up with blood it prevents the air from getting in and expanding the lung, causing it to collapse like a deflated balloon. So Owen's lungs are getting more blood flow and his right lung just need to reinflate with air. Does that make sense? It's almost 2am and I'm running on 4 hours of sleep in the last 48 hours.. bear with me.
The solution.... Owen is back on the ventilator. We have him laying on his left side so that gravity will drain any blood/secretions out of the right lung. The RT is suctioning him often to get the gunk out so that the air can get into his lung and get it inflated again. We started Albuterol and Mucomyst to help expand the lungs and break up secretions as well. The vent settings are forcing air into his lung and allowing his body the rest it needs.
The good news is that his left lung looks wonderful, he has no fluid buildup around his heart or lungs and his chest tube output (drainage) isn't significant. His heart is beautiful and working hard. It's just one setback. I just wish it didn't happen as soon as I left the hospital. Now I am a hot mess.
We decided to keep him off the Fentanyl drip for now and we will just give him Morphin or Versed as needed to keep him comfortable with the breathing tube and lung treatments. Owen hasn't been in much pain since he left the OR and hasn't had any morphine since last night (the night he came out of the OR). We have been managing his pain with only Tylenol. All day long I asked him.. "are you sure you aren't in pain? Do you feel okay? Any ouchies?" and he said he was fine and was really comfortable. Tylenol. A day after having major open heart surgery and his pain med of choice is Tylenol. INCREDIBLE!!! He still doesn't have any morphine in his system and he looks peaceful and pain free.
Owen is resting peacefully. It's been almost 3 hours since intubation and he looks great. All his blood gasses are coming back good, his sats are back up to 100%, and his vent settings are being slowly decreased.
Please keep Owen in your prayers. I am still deciding if I should go get a few hours of rest. I need to take care of me so I can be here for him. Until tomorrow....
Friday, July 19, 2013
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12 comments:
Andrea, I know the fear and worry you have. Try to turn them over to God and remember that the stays in ICU are roller-coaster rides that you take minute by minute. So many are praying for you and love you. I am storming heaven on your behalf! Sending Heart-Mommy strength to you! Owen is in excellent hands, even when you aren't by his side. But I fully get that you need to be with him too! (((((HUGS)))))
Love and Blessings,
Judy
{{{HUG}}} Oh Andrea what a scary night indeed! Saying extra prayers for his lung to clear up and for a more successful extubation the second time around. Also saying extra prayers for continued healing and rest for Owen.
Leave Daddy with him and go get some sleep. You have to take care of yourself too. Hugs.
Prayers for your family. As hard as it is to leave his side, be sure to get some rest so you can be there for him...you need to take care of you too. God bless.
Wow I can't believe that hospital won't allow parents to sleep by their little kids bedside at night! They would seriously have to drag me away. You should talk to the doctor about that.
Island baby, most ICU situations don't let you room in with your child. I'm sure the RMH is super close by. Andrea, don't beat yourself up over not being there... There is absolutely no way for you to predict this. Sounds like he's in wonderful hands with the doctors and nurses, and they truly want this to be a success for Owen. I will continue praying for you ALL.
Andrea, I have felt that guilt of not being there for my baby. It's the worst feeling in the world. But what you said is true. You need the rest to be there for Owen. Take it from a NICU and PICU momma, ICU stays are emotional and physical roller coasters where you are going backwards so you can't see! Owen has many prayer warriors storming Heaven for him.
Andrea, Praying that Owen's Sats will continue to improve and prayers for a full recovery. Owen is a brave little boy and is God's little miracle. I am also amazed that he is not in very much pain and that his pain medication is Tylenol. That is because God our father is taking excellent care of him and making sure that he is not in pain. Give Owen a kiss for me and my brother. I know he has never met us and we have never met him it is just a bond that the Boulden family have. Love from cousins Dianne Wade and Dennis Ridder
What craziness. Listen to me Andrea,PLEASE don't feel guilty that you weren't there when they had to re-intubate Owen. You HAVE to take care of yourself. Owen is being well taken care of by the nurses & doctors.He will need you much more as the recovery continues. He needs you to be healthy. So get some rest and eat a proper meal. Love you guys!
Thinking of you all today. Praying it is a better day and night for you and Owen and all! Thanking God that Owen is in good hands.
I have been glued to your blog this week. I am praying so hard for Owen, and for all of you.
Praying for you guys! I had to smile when you mentioned him only needing Tylenol. I'm a ped nurse at Duke and that's the very reason I love my job. Adults want sympathy and want to waller in their discomfort. Children just want to feel better and get out of bed to play. I'm always amazed with the minimal meds children require just 24-48 hours after open heart surgery. They're much stronger than we are!
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