He finally ate a couple bites of chicken and choked on the cranberry juice just a little. He did great swallowing his water, but we just did tiny sips. He needs to get his vocal cords healed before he starts chugging down his fluids.
We did wean his oxygen to 1/2 liter and he did great with 100% sats. The nurse removed his cannula and his sats dropped to 85 almost instantly. We got him on 1/4 liter to bring them back up and he is still requiring that puff of air. Later in the day we weaned him off again and he maintained his sats of about 93-94%.
Tonight he had a desat episode when we gave his Cyclosporine by mouth and it made him wretch. He puked everywhere and so we had to turn his oxygen back on to a liter. He loves his O2 and I think he needs it a few more days. He has been on O2 since he was a baby, so it's not an issue if we need to use it a bit longer. We will patiently wait until he is ready.
Tonight he had an Albuterol treatment, followed by his Amphotericin B (anti fungal) treatment. He was such a rockstar! It was awful tasting and he fought it a bit at first, but just relaxed and let it be. This boy has earned a toy for tomorrow. An early morning IV, followed by getting in and out of bed, painful chest tubes coming out of his chest cavity, breathing treatments and taking his meds orally (even if they did make him puke). He hasn't complained and just smiles through it all.
If the day weren't busy enough, we just changed his PICC line dressing, the dressing on his neck from the horrible central line and his "zipper" dressing. He just asked for his vibrating treatment on the bed and said "Love you, night night." This boy deserves a good night sleep. He has the same nurse that has taken care of him the last three nights... so she won't bug him at all and will take good care of him.
10 comments:
I love you owen you are my hero and my bravest boy I miss you owen love gigi giselle night nightb
We love you to Jupiter and back a zillion times. Rest everyone! Mom and Dad and Gigi
Night night Owen,
And Mommy.
Hope you can all rest well.
Zzzzzzz
Awww sweet boy! Continuing in my prayers for Owen's post op recovery Andrea! Hope you all had a good nights rest.
Stay strong Owen, you are doin fantastic!!!!!!! Sending LOVE!! <3 <3
I am so proud of ALL of you. Owen is amazing!
Such a blessing to see this little one thriving...and wonderful to see the faith in Christ among all the comments of family and friends. The little one who gave this tiny heart to your boy was a wonderful child, well loved and loving in return. It is a blessing to this little one's family to watch you all honor God and their loss with your responses and prayers. This little heart had so many prayers and blessings poured into it over the last days, may those prayers bless your little one and your family as you receive it with such gratitude to Christ...we're all praying for success for your little superhero :)
So happy to see the good reports, love and prayers to your family.
Thinking of you and in our prayers. Owen looks wonderful!
I hope no updates means you are either getting some much needed rest or spending time with the super amazing Owen! Our prayers are constant!
Post a Comment