Cyclosporine (anti rejection)
CellCept (anti rejection)
Prednisolone (steroid - anti rejection)
Lasix (diuretic)
Cardizem (blood pressure med)
Omeprazole (acid reducer)
Clotrimazole (Owen calls this his mint.. sucks on it to prevent thrush in his mouth)
Septra (treats bacterial infections)
Valcyte (treats viral infections)
Lipitor (helps to prevent Coronary Artery Disease)
At rounds they decided to pull all his tubes and lines today and prep for discharge tomorrow!! YAY! Owen had his chest xray and EKG to ensure the lines were ready to be pulled. After that traumatic and painful experience... he earned a car ride! The chest tubes are long and deep and look horrific when they pull them. Owen loved his ride, but was tired after one ride around the 3rd floor. I still can't get over how well he does with his mask. He loves his "storm trooper mask".
Settled back in his room, Owen was ready to get his PICC line removed. Kam and I ran to do a little laundry and iron out some insurance/pharmacy issues before tomorrow. I think we have things figured out to have all his meds ready by the time we are discharged. The only thing that may keep us here longer are his med levels. Owen will have labs drawn in the AM and we will make sure everything is working at therapeutic levels. Our room at the RMH won't be ready until 3pm, but we have to check out of our room by 10am so they can prep for another family. So I will have a busy morning of packing, moving, and cleaning. Then back to the hospital to prep this boy to come "home".
I am so grateful that C and Kam are here.. I don't know what I'd do without them. We are all working together to make things flow. I am so happy that Owen and his new heart are happy together.
5 comments:
Absolutely fantastic news!! Can hardly believe you are planning for discharge a week post-op! So thrilled for you all - Owen looks fantastic! x
TUBE FREE!!!! That is simply AMAZING!!! Andrea, you have ALL been Rock Stars through all of this. My heart is full of gratitude for Owen's new heart. Many prayers for ALL involved!
It's just so awesome! I can't even figure out how to put in words how excited I am for you guys. You are one awesome family. Hugs
Everytime I see a picture of Owen I just cannot believe how pink he looks! I'm so glad you guys are getting discharged!!
This is awesome news!!! Go Owen Go!!!
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