Post Op Day 5

A decent night sleep did us all some good. Owen had a great night.  He slept well and the nurse didn't have to do much fussing with him.  He did get new bandages all over... that was it.  They took him completely off of Milrinone... yay.  He is only getting Lasix, Tylenol and Rabbit Globulin in his PICC line, everything else is oral (gtube). 

Three times daily he is getting his Nystantin swab of his mouth.  It's disgusting.. I tasted it.  We had the pharmacy order up the lozenges instead and we'll see if they are more tolerable.

Owen has been getting out of bed today.  This morning I moved him over to the recliner while I changed his bedding.  He lasted about 15 minutes.

Occupational therapy came by to work on his swallowing of fluids and food for breakfast.  We are just temporarily thickening his liquids until he gets his voice back.. it gets louder every day!  Physical therapy worked with OT to get Owen out of bed.  He did great!  He stepped out of bed, turned his body around (with a lot of support) and we got him in a wheel chair where he can't slouch and lie down.  He stayed for about 30 minutes before getting too sore.

This morning while giving him IV Lasix, he complained that his foot hurt.  Thankfully it was only about 2 minutes after starting the infusion and it was infiltrating his foot.. so we caught it before it caused harm. 

The plan for today is to leave the chest tubes just one more day.  They put out a little clear drainage overnight and today they are almost not even draining.  So tomorrow it is!  He will feel so much better.  The oxygen is only on 1/4 liter, but it's just enough for him. 

Owen had his amphotericin b anti fungal breathing treatment again this morning and did so great.  It's pretty yucky and he says "Man, I hate this stuff!"  He does it anyway and is so great about it.  It's a green bubbly medicine that turns into a green mist with the mask, so I keep joking that he's going to turn into the Green Goblin (like in Spiderman). 

The rest of the day we will relax and recover.  We are ready to move up to the floor when a bed is available.  They have 7 discharges on the floor and Owen was 4th in line to get kicked out of the CVICU. We will see if we move out today or not.  Everyone is impressed with his quick recovery so far.

Owen's PICC line has been a pest.  Leaking all over and not drawing blood.  So we are keeping his ART line in until Wednesday.  He will go in for his first biopsy on Wednesday and they will place a new PICC line then.  We need IV access over the next couple months.

That's all for today thus far.  I'm sure I'll have more to post in a bit.  Daddy just got here, so I am off to take a nap.  A well deserved nap.