Settled in ICU room 42 (with our own bathroom)... room 42 is in the neuro unit because cardiac was full... thankfully, we got one of our favorite cardiac nurses! The IV team comes and gets the IV in ... Dr.'s have to order the Rituximab... we then wait for the pharmacy to deliver the meds... then we had to start the dose at a very slow rate. What should be a quick 4 hour dose of Rituximab, turns into a 12 hour day of
Owen hasn't had any reactions this time around. Last time he had this treatment he was given Benadryl via his IV and turned into a wild child! We blamed it on the Benadryl. This time he hasn't had any and he is just as crazy. Rituximab side effect perhaps? Could it be ICU boredom?
If our calculations are correct.. he'll be done with his 50cc's by 6pm... then we have to wait around for an hour to be discharged. Do I really have to come back in 7 days for more IVIG? Do I really have to stay for two days next week? I really hope this is going to work!!
7 comments:
Well even though I know how lame it is to be in the ICU longer than planned, it is great to hear that he had no reaction(other than craziness)!
It'll be worth it when he's got a new heart beating in his sweet little chest!
Yuck. What a lot of long days. Hang in there! Hopefully soon this will all just be a bad memory that makes for some good stories.
I hope by this time you're home and Owen is happy and reaction free!!!! Keeping you all in my thoughts and prayers!
Keeping my fingers crossed that everything continued as planned! Always in our prayers.
Hoping all went well and that you're sleeping at home now!
I am placing my bed on the hospital boredom! Mr. Owen is one smart guy and knows when he can get even more attention (I, personally, don't blame him.)!
Love y'all~ Rebecca
praying for round 2 to be calm and peaceful..well with a 1YO!
Glad to hear the infusion is going okay. HUGS for Owen!!
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