Sunday is always quiet here. There have been talks of maybe heading to the step down unit soon. I have some very valid concerns about it, but pending a solution for those, I'm excited to move to a private room on the floor. Owen got out of bed today and walked around his room for about 5 minutes. It must've felt good to walk because he begged the doctors to let him go walk around the unit. Since he is on contact precautions due to the drug resistant Pseudomonas, they wouldn't allow it today but will talk to the Infection Control team tomorrow. Heading to Step Down would mean more freedom but Owen won't get to go to the library or play rooms. Major bummer.
Owen ate a couple Jalapeno potato chips this afternoon and a string cheese tonight. It was something. His poor tummy was pretty nauseated after both but at least he ate. He's getting Zofran IV now so that he can tolerate his many night meds I put in his Gtube.
We are still inching up on his INR... his goal is 2.5 and he is stuck at 1.5. He is getting 9mg of Coumadin which is an insane dose! At home he was on 1.5mg and his goal was always 1.5-2. He has a very healthy liver. ;)
We played a bunch of board games, listened to music and watched a little tv today. Tomorrow starts a new week. This is week 5 for us... wish us luck!
I got lots of facetime chat in with my babies today. Logi belly laughed for me a few times and I just want to reach through the phone and smooch him. Kam is doing great and Carson is holding down the fort seamlessly. We can do this.
7 comments:
Haha Owen looks so chill. What a face! Glad things are stable. You guys are awesome.
So happy to see him smiling! Hang in there...you've got this! Praying for you
So happy to see him smiling! Hang in there...you've got this! Praying for you
A healthier diet is in order. His food choices are not the best for a heart failure child who is not active.
Food services Director/Doctors/Nurses needs to help with healthier choices of foods to offer often throughout the day. Shocked at Stanford for not advising this.
I'm pretty sure the goal at this point is to let him eat anything that sounds remotely good to him. If he's willing to try it, they want to let him just to keep his digestive tract "awake." He's getting his nutrients through IV/tube so anything taken orally is just bonus. Don't forget that weight gain is a goal for him currently too. His mama and the hospital are doing an amazing job!
At this point everyone is happy for any food that will be eaten.
Your doing great mom!
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