Monday FUNday

It was the start of a busy week around here.   We are just hanging in there passing time.  We played board games all afternoon and listened to music.  Owen went for a walk around his tiny room.  They won't let him out of his room (we tried), so he wanted to sit right at the open door and look into the hall.  Silly boy.

He was up over a pound today of excess fluid.  We switched his IV diuretics to Oral and he was fluid positive.  We'll see how he does tonight with bigger oral doses.  He is getting a lot of diuretics.  We still have no clear reason why his Coumadin dose is so high and his iNR isn't budging.  So frustrating.  We are working on nutrition and each day we get a little better.  I woke up at 5am this morning to run to the store and grab some groceries/snacks.  He ate a few peanuts, a couple chips and drank a lot more than usual.   I was also able to push a little more feeds into his tummy.  Tomorrow will be better day and he's already asking for pretzel bites from the mall.  It makes me very happy! 

Everything else is hurry up and wait.  One of our heart buddies in Phoenix is getting his heart tonight so keep Mr. Kaiden in your prayers.  He was listed for the same reason as Owen but was at home, stable, listed status 2.  It's almost unheard of to get a heart as a status 2, so it's pretty amazing!

Owen loved people watching and chatting with anyone who stopped by to listen.  The boy is a chatterbox!

Back home.. the kids made homemade pretzels while Logi took a long afternoon nap.  I'm sure he was thrilled to eat their creations.  Teenagers are so fun... this boy is very lucky.