So today started off pretty stable. Just before bed last night, the docs came in and told me they were pretty sure fungus was growing on the cultures taken from his secretions in the breathing tube. We gave him an IV dose of fluconazole as an anti fungal. In rounds today they discussed doing a bronchoscopy bedside and CT scan to look at the lungs. Infectious Disease came by around lunch time and after reviewing his CT scan from the 25th and watching the gram negative rod cultures grow, they determine it was not fungal (thank goodness!) and that it's bacterial. So we cancelled our big plans and decided to just relax today. We are still waiting to find out the exact bacteria we are tackling and covering him with Vanco and Cefapime in the meantime. Please pray for these fevers to cease. Tonight he spiked another and his HR went as high as 195. They let us hang his IV Tylenol early and the nurse put ice packs on his groin area. His HR went down to the 170s quickly and the fever is finally under control. He just has no reserves for these fevers. He's still coughing secretion but nothing like yesterday so that's good.
He was up and we watched a few movies today. He had a few moments where he was emotional and I totally get it. He is being such a trooper. Ativan is working very well as needed and keeps him relaxed. He will ask for it every time he wants it or needs it. He is such a good boy! Tonight we pulled his Femoral central line in his leg so that has to feel better.
He has the best nurses with one on one care and he is so well cared for. He continues to hang in there.
12 comments:
Love you both!! Continued prayers for Owen's next miracle 🙏❤️
Still praying in Scotland for you all. What a fabulous boy Owen is - I can't believe how well he is coping with this - praying for strength and peace of mind for mum and dad and all family members
Continued prayer for Owen and his family.
Continued prayer for Owen and his family.
I have just recently found your blog about Owen! As a mother, my heart aches for you but your courage and determination for your child is breathtaking! Owen baby, I am praying for you. What a strong and brave boy you are! I have no doubt that God is watching over you. He has big plans for you sweet you so you hang in there and rest that heart of yours. Know that God gives his biggest battles to his strongest warriors! Prayers from Ohio! Hugs!
So many prayers, and heart hugs too!
So many prayers, and heart hugs too!
Prayers for all.
Prayers for all.
Just finished praying for you all! You are a trooper and perspective use everything, you sure have a positive one! Love and heart hugs!!!
Owen is the strongest boy I know!! I don't know many adults that could handle being awake and on the vent! Andrea, is it possible for us to send Owen some cards via mail? If you could post the hospital address, I would love to send him a card!!
Maggie Johnson
Continued prayers for all of you. It's a marathon not a sprint which can be so difficult.
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