"Hey Everyone. Thanks for all the prayers and blessings you have given me the past three weeks that I've been in the hospital.. and that you are all saying have good dreams...and that you give me a few more so I can make it through this. Thank you guys... bye."
Sweetest. Boy. Ever.
Today started off kinda rough. He wouldn't eat a single thing or sit up in bed. He felt kinda yuck and I am certain it's due to us stopping his Epi. We need to see his new baseline and I sure hope this isn't it. He finally sat up in bed around 4pm and wanted to eat. He had two strawberry halves and a few pita chips and is back down watching TV some more. The energy is not there and his little voice is so breathy when he talks. Dr Rosenthal has been on this weekend so he came in and we chatted. We'll watch and see but we may have to go back up on some of the cardiac meds (Epi, Dopamine dose) while we wait. Time will tell. Until tomorrow.
9 comments:
Owen is the sweetest boy ever!!! He made me cry! Owen is the most amazing boy! Seeing him struggle from heart failure is heart breaking but I know he will win this battle!
So good to hear his voice! Melts my heart how sweet and brave he is. I check in on you guys every day and pray that each one is better than the last.
This totally made me cry. You don't now me Owen but I love you and I'm so happy you are feeling a bit better. Hang in the tough guy. You are a superhero to us, my heart baby David is almost 10 and he LOVES to keep updated on how you are doing. Hugs to you and your Momma.
So very happy to see your face and hear your voice. Cheering for you and praying every day. Hugs to you and your momma!. Jody
Sending you the sweetest of dreams with all super heros included and a brand new super strong heart when you are listed 1A again. Meanwhile... Rest and think the happiest thoughts and build an awesome lego castle for Batman who is sending special powers and hugs!
Thank you Owen. You are such a strong, brave boy and we are praying for you in Scotland. There's always a blog post when I wake up in the morning because we are in a different time zone from you - I always check as soon as I wake up to see how you are doing - praying for you to have continued strength and courage xxx
Thank you Owen! You brought tears to my eyes. Sending many prayers for you! What a sweet and strong boy you are. May you find healing very soon.
Praying for you Superhero Owen!!!
Praying for your mama and family too :)
Stay strong! Bless you for your video!
Lots of love and prayers coming to you from Long Beach! Back in 1956, surviving my BT-shunt was a miracle. My doctor developed a new surgery for me for my correction in 1972. I was born at the right time. So were you. You are my heart Super Hero.
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