Out of Bed

Owen had a great day! He continues to be fluid negative and his HR, BP, O2 and RR are all good. His CVP is still pretty elevated in the high teens but baby steps in the right direction.  His chest xray even looked a little better (to me) today.  We are giving him plenty of IV diuretics and that means we find the smallest adult diaper and layer it with an infant diaper inside... then we strap it all on and it looks ridiculous but is super functional. 

Today Owen got out of bed for the first time in FOUR weeks!!  He stood on the scale and was a whopping 49.6lbs.  His little legs are so weak so we let him sit in a small wheelchair while we did PT.  He stayed in the chair for about 10 minutes and wanted right back in bed.  He was super proud of himself!  It was a good morning and he hasn't napped all day.  We played Legos, watched movies and he got two awesome packages in the mail.    It was a busy day so I'm hoping for an early bedtime.. Mama is TIRED.

Kam and Logi are having fun at the lake with cousins and I Love getting updates on all their adventures.  Daddy is missing his crazy kids at home but said he slept REALLY good last night. :)

Prayers that a heart comes soon when the timing is right and that Owen continues to remain stable.