Today was a pretty uneventful, lazy afternoon. We turned off the Dopamine today and he has done ok. We turned off the oxygen, but his sats dropped into the 80s and hung out there for a little too long. We had to put the cannula back on (thankfully he doesn't mind) and he is on .5 liter flow to keep his sats up. Aside from that, he watched a lot of tv, we read a little and he took a long afternoon nap. We are discovering his new normal and it means little to no energy. He hasn't eating a thing really. Today he wanted a strawberry for breakfast. Tonight he wanted CPK Pizza and the nurse introduced us to Door Dash! I went online and ordered CPK Pizza, free delivery and a tip... they delivered his pizza right to the hospital. AMAZING! I'm in trouble when he actually does get an appetite and he doesn't like hospital food. Not so sure knowing about Door Dash is going to be a good thing... then again he can eat anything he wants because he has earned it!
That was our day. Here is my view all day from my old creaking rocking chair in the corner. we are keeping our spirits up and having as much fun as Owen can tolerate. I am used to going 100 miles a minute and never sitting down. Now I am mostly sitting in this small ICU room watching a monitor, counting down the hours, and taking care of Owen. It's a good lesson in taking a step back, relaxing and focusing on the important things.
Until tomorrow...
1 comment:
Hang in there!! Prayers are still coming your way!!
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