Today was another great day! Owen ditched the Oxygen and is cannula free... YAY! He is a chatterbox and his voice is getting a little stronger each day. He still is really breathy due to heart failure, but he just keeps talking. He has been playing his iPad for most the day, then legos and a movie. His echo from yesterday showed a little improvement which is a huge blessing! We increased his Milrinone today to see if it would help him feel hungry since it is an afterload reducer. He still won't eat and he is still feeling nauseated throughout the day. We try to limit the IV Zofran for the times we really need it due to possible drug interactions.
Overall a good day and we are making progress in the right direction. It's time for dressing changes... every Wednesday.. it feels like we just did this. Owen HATES dressing changes because it stings and burns. A dose of Ativan, dressing changes and hopefully he will sleep like a rock tonight. Prayers for continued stability and a new heart!
These two are having so much fun at the lake. Logan has been running himself exhausted! I love getting fun little videos throughout the day. Two weeks from today I get to wrap my arms around these two and I'll have a whole week of snuggles. So excited!!
6 comments:
He has come so far. One amazing guy. Prayers and love!
Praise God!
Praise God!
Love seeing his face without the tubing. His smile warms my heart!! #prayersup❤️🙏🏻
Great news. Sending hugs.
Keep fighting Owen! You're one amazing, strong & brave boy. Andrea, you are the mother of all mothers!! What a team you two make. :) Wishing you more good days ahead & that time flies until you can hug on your two "other babies." Sending love & strength from the desert! The Boedigheimer Family, Scottsdale, AZ
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