Germ Defense

We are settling into our new room on the floor.  I ended up sleeping on the sofa in Owen's room last night and it was a LONG night of pumps and alarms going crazy!  We got the kinks worked out today.  Owen was up and ready to play this morning.  He wasn't too thrilled about getting an echo and was a stinker when it was time for PT.  Then he crashed for about 3 hours!  He was so tired.  He woke up a little more chill and was thrilled that Child Life bought him Pop The Pig (he requested it last week and since they didn't have it, she ordered it for him).  He played with Allison for a while and then settled in to watch a movie.  We got his med lines all changed out this evening and I feel wiped out.  I will head back to the RMH soon so I can get all my laundry caught up and get a quick night's sleep.

We have family coming over the next week so Owen is thrilled.  We chatted in rounds about precautions and the issue is not so much him spreading germs around the hospital.  Since his absolute Neutrophil count is WAY too low, we need to keep infection away from him.  So we are on reverse isolation.  Anyone that comes to visit has to be 150% healthy and wash/scrub/sanitize like crazy.  My hands are raw from all the handwashing I do and I always wear gloves around the little guy.  Lets call it Germ Defense.

I'll post more tomorrow but I am falling asleep on my laptop.  As soon as Owen has drifted off I will smooch him and head out.  He has had phenomenol nurses on the floor thus far.  Praying for stability until he gets a heart.