Status 1A

Owen had another pretty good day. He is so lazy and doesn't have a ton of energy but he is happy. The best news of the day was that Owen was placed back on the transplant list status 1A!  Let the wait begin...

This little man still has zero appetite and says he feels nauseated most of the day.  He will take a sip or two of water and that's about it.  No food whatsoever.  He was super excited about the idea of having beef jerky so I grabbed some from the vending machine and he said "nevermind.. I just can't."  He is getting TPN/Lipids and I am giving him l0-20ccs here and there throughout the day. 

Today we finish up his 14 day course of antibiotics.  I am super nervous to get his antibody results back because there is a good chance that everything he has endured in the past 3-4 weeks have caused his antibodies to creep back.  Pray this isn't the case!  We should know soon.

Everyday is a waiting game and we just pray that he remains stable until his heart comes.

I took some pictures of the RMH for Owen because he really wanted to see what the new house looks like. I know many of you have asked for our address so here it is:
OWEN SIMMONS
RMH STANFORD
520 Sand Hill Road
Palo Alto, CA 94304
*It has to be addressed to Owen

  Here is my bathroom...

Bedroom...

The dining room...

There are a bunch of lounge areas and play rooms that I didn't get pics of yet on my way out.  It's gorgeous inside. 

Until tomorrow...