A Good Day

Today has been a better day! Owen had a good night sleep and woke up feeling a little more like himself.  He wouldn't eat or drink anything all day and his tummy is completely empty, aside from Teaspoons of tube feeds I give him throughout the day.  Tonight he asked for spicy chicken wings from KFC (random) and he wouldn't let me leave to go get them.  So we used DoorDash once again and he was thrilled to get his KFC delivery an hour later.  He ate a few bites of one chicken wing and was done, but it's better than nothing and he was excited to eat it.  He only took one tiny sip of his drink, but it was celebrated! 

We decided to try increasing his Milrinone dose this morning from .25 to .5 and he has been more lively today.  It may have just been coincidental.. either way, I'll take it.  He built legos, watched movies on his IPad (for the first time in 3 weeks) and took a short afternoon nap. 

His Lovenox injection sites are still bleeding like crazy, but it means his blood is thin and that means less risk of his stent occluding.  His room is still on contact precautions for the indefinite future due to this antibiotic resistant Pseudonomas Pneumonia (not all antibiotics, but resistant to some).

We are hanging in there and doing what we can to pass the time.   I met a mom waiting in line for the bathroom a few days ago and her son (totally healthy) was just diagnosed with a brain tumor.  Today she was in the hall and I just gave her a hug.   Her little guy was getting a head CT due to excessive brain bleeds post brain surgery.  My heart and prayers go out to them.  So many heartbreaking stories from parents that roam these halls.

Back home.. this little boy is having so much fun!  The teenagers all went to the mall today and Auntie Sussy took him to the indoor playplace.  He has never been because I am a germaphobe.  They took him to Bath and Body Works after playing to wash his hands with yummy antibacterial soaps.

Then my little fishy went swimming and he LOVES the pool!  I was supposed to be teaching him to swim this summer.  I'm glad they are having fun while we are apart.  Time will pass quickly and we will soon be swimming together again. 

Until Tomorrow... prayers for a quiet evening.