Trial and Error

Owen had a pretty good night.  Daddy spent the night and they watched his Batman movies that his heart buddy brought the other night.  He loved them!  Report was he slept well and he is feeling great this morning.   Before I left last night we had to restart his Epinepherine.  His belly looks distended (bloated), his renal sats dropped and his central venous pressures increased.  They decided to restart  Epinepherine  and all levels improved.  Dr Z came in this morning for assessment and said "we have a long way to go."  We are very aware that things are hour by hour at this point.  

The plan today is to leave Epi alone, wean milrinone a bit, add Captopril back, stop Lasix drip, and wean off oxygen as tolerated.  Each day will be trial and error until he is eventually off iv medications and on oral.  Like Dr Z said..this is going to be a long road to recovery with no guarantees there will be a good outcome.  Baby steps in the right direction though.  

Owen already did PT today and just ordered chicken for lunch.  Keeping him in a routine and busy is our job.  Logi is going to think hospitals are normal places to spend his days.  Thankfully he is totally chill and happy the majority of the time.  Kam likes to hang out after school  and the teen cousins discovered the hospital teen room and starbucks.  This is our life right now and we are starting to find our routine.  We are still hopeful for a full recovery  and we are prepared to be patient.