Monday, April 20, 2015

Bleeding

This little superhero is finally resting tonight.  It was a long, exhausting, emotional day.  Day 12 of being inpatient is taking its toll.  I cannot even imagine not being able to move my own body or even  get up out of bed.  He has to ask to have his position changed or to scootch higher.  We are constantly drawing labs on his lines, pumping him full off iv meds, giving him lots of oral meds and gtube feeding him for nutrition.  Docs and nurses come in and out and feel his liver and toes, then listen to his heart.  To top it off he is on ECMO, wide awake, and in heart failure.  Today he just cried and said how emotional and frustrated he felt.  He needed to get it out.  His feelings are more than valid.

We woke him from a nap this afternoon because his ecmo cannulas were bleeding so much it saturated his pillow and back.   His labs looked within range and we had given him platlets last night to help too.  After changing the dressings on his neck and leg, the neck continued to bleed.

We called the cardiothoracic surgeon in tonight to look at the site and ended up needed to place a stitch.  We gave Owen a little Ketamine and he was comfortably awake.  Brave doesn't  even define him tonight.  He just laid there as Dr Nigro placed stitches in his neck and the only thing he kept saying is "where is my mom?  I want my mom."  I am so glad  they let me gown up and stand there to rub his hand and watch.  There were no tears and he was tough.  He wasn't a fan of the Ketemine as it wore off so we uaed Ativan to help.  Now he is sound asleep.

Here is to a new day tomorrow.

10 comments:

cici said...

I am changing my Profile photo in honor of my hero ... Owen
{{{Big Superhero hug}}}}}

Unknown said...

Is there an address my 8 year old 'heart baby' can send a card to for Owen? We live in North Pole Alaska and prayers are being sent up for Owen and your family.

Unknown said...

We are continuing to pray and think about you guys!

Unknown said...

From one heart mom to another...prayers. We will continue to lift your brave boy and the rest of your family as you face today and the next.

Unknown said...

Prayer for all of you. Owen is one tuff little boy. Owen you got this! Hang in there little man, mommy and Daddy too!

Sonnie said...

Praying for precious Owen. Think of you and your family often and wish I was close enough to help. So the only help I can give is prayer which is what I'll be doing. What a brave brave boy he his.

Summer said...

Sorry for a rough day and night 😪!! Prayers for a much better day today!! Hugs❤️

Tracy said...

Darn!! Poor Buddy , so brave and strong. Dear heavenly Father protect and Heal sweet Owen.

Livin' the Lipinczyk Life said...

Hi There,
We are new to the heart family community as our daughter is almost 5 months old and had open heart surgery at PCH when she was 10 days old. Her surgeon was Dr. Valez, and we owe so much to him and the team of nurses who cared for our little girl, Kinley. We didn't know about her heart condition so it was and still is quite a lot to absorb. I can only imagine all that you have to retain and try to manage with your situation.

Anyway, I have been following your story and let me 1st say....your entire family is INCREDIBLE! What an inspiration you all are and every day when I check your blog, I am in awe of the positive attitude, courage, and strength you continue to express. Owen is a ROCKSTAR! Our family continues to pray for you all nightly. Keep up the great work!

P.S. I hope you at least got a room with one of those couch beds and you haven't been sleeping the in wonderful recliners :)

KrisAnn said...

Keeping you and your family in my thoughts & prayers.