He woke up today feeling "like a million bucks!" He sat up in bed, played Legos, and ate jalepeno chips. At rounds we discussed the plan today. We take things day to day around here. We are weaning off the Nitric he has flowing in his oxygen cannula. We weaned off the Norepi and will hopefully get him off the Epinepherine by tonight. He is getting extra magnesium and calcium via IV, along with lasix (diuretic) and Milrinone. That is it for today! We are still in a critical place from a cardiac standpoint. Owen tolerates heart failure well so looks can be deceiving. His heart has a long road to recovery and transplant is still in our back pocket as an option. For now...plan A..rehab of his perfect donor heart is the path we are on.
Owen got out of bed and stood for the first time in 15 days!! He said it felt amazing! PT did about 10min with him, which was all he would tolerate. We got him moved to the chair and he is eating some pizza and watching a movie. He is starting to run on a short fuse so I am hoping a nap is in his near future.
8 comments:
I love seeing his sweet smiles!!! It is so good to see him getting out of bed Andrea! Heck it made me tear up a bit! Praying he continues moving forward! Enjoy your night in your own bed. I know how good that feels after being in the hospital so long! <3
What a great update. Our hearts jumped for joy when we saw him standing. Continued prayers.
That picture of his smile is like a strong dose of happy meds!
Owen is truly amazing and so is his mama!!!
<3 His happy face <3
Love his happy face and cool Legos!
Yay yay yay!!!!!! How amazing standing up and sitting must have felt!
So glad to see that progress is being made, and let’s hope that his heart continues to mend and do its job! Best wishes to your entire family - can’t even imagine the stress you’ve been through and are still facing. Sending continued strength to all of you.
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