Owen had another great night! His numbers all look really "encouraging." I got a call last night that we moved Owen to status 7 on the transplant list. This heart is going to recover...I have a good feeling. He has a guardian angel watching over him and Owen knows he was gifted a perfect heart (almost) 2 years ago. It is still so unreal that 3 weeks ago he was totally fine. He went from a tummy ache to an echo showing severe cardiac dysfunction to ECMO support within 48hours.
I am amazed at how brave he has been and his maturity through it all. He is going to have some serious battle scars to go along with his many others. Scars that tell his story of courage and strength.
Yesterday, a friend sent me a link to a People.com article ...surprise. ..it is Owen! He felt like such a rockstar and has been so excited to tell all his nurses and doctors. I am pretty certain he has no idea what People is at 7years old..but he loves to get a reaction. The story is not totally accurate but I suppose I am to blame. It looks they gathered info from my blog under Owen's bio on the sidebar. I havent updated my layout in forever..so it was outdated. I have it updated now.
http://www.people.com/article/chris-evans-captain-america-get-well-owen-simmons
This morning Owen asked me to count all the money in his "piggy bank". He has been hitting up visitors, nurses and doctors for 2 weeks! The grand total was $183! Can you believe it? To a 7 year old that is just about as great as a million! His smile is worth every penny!!
The plan today is to try and wean Epinepherine again. We will also change all his dressings and give the stinky boy a bath. Spa day in the CICU! Happy weekend!
3 comments:
Love this!! You go Owen!! Prayers for a peaceful weekend ❤️
His smile melts my heart!
Owen, what are you going to buy with all that money???? Maybe mom can take you to toys r us when you're up and running so you can pick some super fun summer toys out!!!!
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