Passing Time

Owen has been doing great! He is official weaned off of Epinepherine as of last night. Things look okay. Tomorrow morning he will have another echo, the first once since coming off ECMO, to look at his cardiac function. I have high hopes for even a little improvement.

Today we started Owen on Aldactazide.  It is a new med and the first one I had to research.  All the other medications he has been on in the past, used to treat heart failure, or immediately post transplant.

I found some photos on my phone that I haven't posted.  Owen loves visitors!  Well..most of the time.  He isn't afraid to say "it's time to leave."

Gigi loves chatting with the medical team and playing nurse.

The little girls were a bit nervous.  My sis told them the ECMO circuit were red hoses.  Owen was quick to twll them it was hos blood!

Connor and Uncle Rustyn brough Owen some cool comic books.  I love that Owens biceps are just about as big as Connors.  Skinny bones must run in the family.

Kam goes to school with her cousins so Auntie Sussy brings them straight up from school.  Owen gave them all tattoos that Jean  gave him.  Then he tattooed my parents, Uncle Rog and Gi.  He loves those tattoos!

This little squish loves to visit!  Its so hard to be apart from this little guy.  He visits often and I went home to sleep and snuggle him last night.  Thank goodness for private rooms in the cvicu and sibling restrictions have been lifted .  

We are taking baby steps in the right direction and keeping busy to pass the time.  Owen is in great spirits and just needs a little nudge here and there to want to get out of bed.  He has lost every ounce of muscle he had, which wasn't much, so he has a lot of rehab moving forward.