Another eventful day in the CVICU. Owen finally got the chicken nuggets he has been asking for!! He also had some pretzels, a little bit of cheese pizza and three kernals of corn. Baby steps.
Owen's ECMO nurse today is the clinical supervisor and she wanted to get Owen up and moving! Yes.. on ECMO. It is pretty unheard of but he did it!! PT came in at 2:30 and it took 6 nurses to sit him up carefully as to not bump those cannulas to his heart. He did some PT, got his bedding changed, and we wiped down his entire body with the sanitary wipes we use before going to the OR. He felt like a million bucks. After the nurses got their PT by holding up all the cannulas and wires, Owen settled in for a nap. But seriously... Physical Therapy and up in bed on ECMO is a pretty superhuman feat! He required zero Ativan today, hasn't had a dose of Morphine, and is on minimal Fentynal drip. This boy has a high tolerance for pain! Then to sit in bed in the same position and not move unless we help him is so incredible. I'm telling you.. everyone is amazed at how he is tolerating this.
On another note... look who ditched his oxygen!! I took off his cannula so I could change the tape to the tendergrips he used to use. His sats never dipped back down so we just left it off. He had lots of visitors again today. Uncle Rusty and Connor bought him a bunch of comic books.. so cool!
His Deadpool piggy bank is sure the talk of his room and he would be the best fundraiser in the world. The boy is collecting money like crazy from all the staff at the hospital. He doesn't care if it's pennies or dollars.. he just gets thrilled when they put money in there! It's been really fun for him!
Daddy is sleeping at the hospital tonight because Logi has been keeping him up at night. You know it's bad when you choose to sleep at the hospital to actually GET a good night's sleep. I'm actually excited to sleep in my own bed for the first time in 7 days!
Prayers for ECMO trial in the morning!! I'll be there bright and early!!
Wednesday, April 15, 2015
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20 comments:
You probably get tired of hearing this but ....AMAZING! I still can't believe all he is doing, Yay Owen! You're such an inspiration
So amazed at you Owen!!! Keep it up!! We're following every single one of your mom's posts! Can't wait to see you home!
Two words... Simply. Amazing. Owen you are such an inspiration. Keep up the good fight, buddy!
i think he loves the Hospital attention and spoiling little too much?
Keep up the great work Owen!!! Super Duper!!!
What a lovely post to read! Thank you for sharing that wonderful day. Prayers continue.
Glad to see he is doing wel. Deadpool piggy bank?
Wonderful news! Go Owen! Praying all the time for Owen's continued recovery!
WOW...no other words can describe Owen. He is an amazing little guy. PT on ECMO is a definite feat. Way to go Owen...can't wait until morning when they take the ECMO cannulas out.
This made me cry such happy tears. Paxton sends Owen a huge heart fist pump!! God is amazing and so are all of you!!!! Continuing to pray!!!!!!
Owen is bringing joy to the world with his smile and his attitude! Wishing you continued miracles, amazing (AMAZING!) medical care, and Owen's smile. You tell him he has fans all over the world!
Blessings,
Elisheva, writing from Israel
That is seriously SO unreal!!!! Wow wow wow! Can't wait for more good news tomorrow! Prayer and hugs!
Owen's smile brightened my day! I'm so glad he is making small improvements and was able to have vent removed and get out of bed! He is amazing. Keep it up buddy! Good luck today.
You rock Owen!!! You are a super star!!! Mason sends high fives! We continue to hope and prayers for your special heart to make a full recovery!❤️
He is amazing!! Sending our love. Checking in on you guys all the time so thanks for keeping us updated.
So fantastic!!! Yay!!!🎉
Wow...Amazing...God is good! Continued prayers as ECMO trials begin!
I hadn't checked your blog in over a week and was surprised to how things have evolved since then. His improvement is simply amazing.
Will certainly pray for you guys.
Amanda, heart mom in ATL
Wow! I can't believe the difference in just ONE week. You truly are a superhero Owen.
Wow! I can't believe the difference in just ONE week. You truly are a superhero Owen.
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