There was plenty of discussions at morning rounds. We decided to do another ECMO trial with echo. His left vent ejection fracture looks better, his lactaid is down and his labs look good. All good things. Owen tolerated the wean today..no nausea or feeling awful like he did Thursday. His hemodynamics didn't change all that much either. We clamped the LV and turned down to minimal support. After gathering data the doctors discussed briefly and decided to let things be until Wednesday. He is still on his original ECMO circuit and its looking good. If something went wrong with the circuit then they would feel okay taking him off and crutch him along. Hopeful he just needs a couple more days. Everyday shows a little improvement. We are going to be patient.
He is always cold, but I am told its because he isn't up and moving his body around. It makes sense. They cam control the temp of the blood circulating through the ECMO machine which is so cool too. He ate a half of turkey sandwich which was more than he ate all week orally. He is getting 1400 cals in his gtube so nutrition is my focus.
The team is all split up in cath labs, clinic and OR right now but will.meet up in a couple hours in conjunction with Stanford. There will be a clear game plan made then. I just didn't want to leave everyone hanging. Prayers continue. I know this heart can heal! We just need patience. Its amazing not only how well Owen tolerates being on ECMO, but how well the circuit is behaving. All good and positive things.
8 comments:
W. O. N. D. E. R. F. U. L. Update!!!! Love it! I am still praying though as I realize your little superhero still has some battles to face!
10 days on the same circuit is great! Trust me as someone who works with ECMO kids here in Canada, that is amazing!! I hope things go great these next couple of days!
10 days on the same circuit is great! Trust me as someone who works with ECMO kids here in Canada, that is amazing!! I hope things go great these next couple of days!
LOVE!!!
Great update . Thanks for thinking of us too. Love and prayers.
***Sigh**** of relief
Love to hear he is turning the corner towards healing.
Sounds like he is getting the greatest care from every direction.
Prayers are for sure being heard :)
Great news!!!! I am glad to hear that things went well with the trial today! HUGE relief too! Praying for things to continue heading in the right direction for all of you.
I wanted you to know you have been in my thoughts and prayers, I've been following your blog and your son is so sweet, he has such courage. I have a special place in my heart for Phoenix Children's, my daughter was on the ECMO, I grew to love the ECMO team and all the nurses, your in good hands, the best! Praying for healing of your son.
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