Day to Day

I have been pulling double duty with Owen and Logan at the hospital all day. After 2 1/2 weeks off work, Carson was ready to get back! Kam has been super busy trying to get through the last 3 weeks of her freshman year while keeping up her 4.5gpa. She is amazing!

Owen's echo looked a little better on Monday.  His heart atill has a ways to go, but its improving a little at a time.  We spend our days tweaking meds and optimizing therapies.

We removed his arterial line yesterday, so both arms are IV free!  He just has the tunneled central line in his chest now.  He is on only one infusion of Milrinone and we are weaning that a little at a time.

There was concern last night that there may be a clot in his left atrium from where the ecmo cannula sat for 13 days, but today's echo was clean!

I honestly don't know what we do all day but hospital time flies by.  Owen has PT once a day, and I make him get out of bed at least 5 times a day.  Today we ditched the Pampers since he can finally get up and walk to the restroom.  It's the little things that make a huge difference.

Owen is chowing down all day thanks to the steroids.  Daddy blends his super healthy food in the am (salmon, kale, quinoa, ect) and I inject into his gtube every hour all day and night.  It's  tedious, but good nutrition is key in recovery.

Last night before shift change we moved into another room in the cvicu.  It was super clean and the sink works!  (Our sink broke in our old room)

Owen got this awesome Captain America Build A Bear from a neighbor and a get well card from the folks at BAB.  They recorded Chris Evans voice message into the bear so he can hear it when he presses the paw.  His bear also has a heartbeat.  Very thoughtful!

Our nurse brought a mat in for Logan to play on.  I laid Logi on his back this morning and  turned around to see him on his tummy playing with toys.  He is so strong at 4 months!  He was all over the mat and ready to explore the room.  Time  to get out of the hospital before he is mobile!

I never did a proper 4 month post for Logan but he is doing great.  He is 17lbs and super long!  He is growing out of his 6 month clothes and is apparently able to roll over from back to tummy and back again.

We don't know what is happening from day to day, but everyone is blown away by Owen.  His positive attitude and funny personality helps us all get through each day.  We play board games, card games, entertain visitors, eat snacks, do crafts, read books, watch movies and dream about the day we get to go home.

Baby steps.