It was not
one of my best days. We had an early morning wake up from a cardio fellow "Mom..we are going to do a quick discharge echo and get you guys out of here quickly.. we really need your room." Yay... except for that I didn't have any IV supplies from the home pharmacy yet.
We packed up, ate breakfast and were out of there by 10:30 as soon as we got his IV Milrinone and pump ready to go. It's all me now. We had wagon full of medical supplies, our single suitcase and meds to drag over to the Ronald McDonald House. I was in tears before I hit the parking lot. It was just such a rush of crazy and then the reality just sets in that we aren't going home.. not for a long time. This is our new home.
I forgot to take pictures of the wicked awesome 1990 mauve and green comforters that match the green carpet(ish) flooring. I gave the room a full scrub down when we arrived with the hospital disinfectant wipes. I also tore the bedding off the beds. Owen and I checked in at 11 and after three loads back and forth to the car, we got things unpacked quickly.
We had to buy bedding, a TV (none in the room), a bath rug and some necessities. I had a list of things in my head, but I was so exhausted when I got to Costco, it took everything in me not to break down. I felt like I was a college student in a new place, I don't know anyone, I don't have anything I need... it was exhausting. Only then I look down to my brave boy sleeping in his stroller with his oxygen tubing, Gtube, IV pump and PICC line and it's so real.
We made it through Walmart and forgot just about everything we needed but ended up with lots of produce, so at least we have breakfast covered.
This is our view when we walk in our door.
Our Bathroom.
Our bedroom. I bought a tiny TV because it was cheap and functional.
This is Owen's medical supply drawer. I have so much more coming on Monday, I will have to organize better... but you get an idea.
This is the closet.. formula for backup, Press n Seal to cover the PICC line when he bathes, and the Sharps container for the Heparin syringes.
That's a tour of our new digs. We have a community kitchen and laundry room on the first floor. The kitchen gets crazy at all hours of the day, so we have to avoid the germs as much as possible. Tonight was McDonalds night at the house and Owen got a chicken happy meal.. it was the first time he's ever had McDs and he wasn't impressed. It was nice of them to donate so much food though.
Owen is sound asleep.. I am hoping to join him. I miss home.
6 comments:
Wow it's so spacious and you have your own private bathroom too?! Nice! Thank god for Ronald McDonald houses and making it possible for families to stay long term affordably! I always donate to them. You are so blessed! Try to ignore the color of the carpets and bedding and focus instead on the bigger picture. You'll do fine. :) Hope Owen feels stronger on the milrinone.
{{{{{{{HUG}}}}}}}} to you Andrea! I am sure this has to be difficult at times for you being away from your home and the rest of your family. I would probably have some teary moments too. Saying many prayers for you guys Andrea. Hoping you can get adjusted to your new home quickly and are able to settle in a bit more. Thinking of you always. <3
Hugs to you, I cannot imagine what you are going through. Your room does seem a lot nicer then the RMDH in Ann Arbor, MI. The room we had when they boys were born was very small and only had two twin beds. I was on high anxiety the whole time we were in the room.
Here's a suggestion... You might want to pick up some of those removable wall decals to decorate the walls and make it more homey for Owen. Walmart has them. We got the super hero ones for our son and it really made his space his own. We also picked up an inexpensive bean bag chair that was a comfy place for him to hang out and watch a movie. Love that you added your own touch with the bedding. You will see that soon some of these other families will even end up being your good friends and support system. Give it some time. Things will get better. Been there. Done it. It's certainly never easy at first, but trust me it will get better. Hang in there!
Lots of hugs to you and Owen.Maybe putting up a pic of your hubby and Kam too will help you feel better.
I cannot imagine how you are feeling at this time.When Broc was in hospital for a while we put pics on the wall too.It made it feel like home a bit too.
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