Boy of Steel

We survived our first night in the RMH. The air mattress was a little back breaking, but it was doable.  I think we were both ready to get outside and explore a little today.  We went downstairs to the kitchen for breakfast and to blend Owen's gtube feeds for the day.  Then we headed back to our room to get ready for the day.  Turns out Mommy didn't have any clean shorts or pants.. hospital life.. so we did a few loads of laundry first.

We decided to head north to Redwood City to finally see Man of Steel.  Owen has been so excited to see the new Superman movie and it did not disappoint this boy.  He was smiling the entire movie and kept giving me the thumbs up.  Now he wants to spend his money on a new General Zod and Superman toy so they can have an "epic battle". 

We decided to grab a grilled cheese at The Melt next door to the theatre.  It was pretty delish and for a $5 dinner, it can't be beat.  We hit up Costco on our way home for a super plush memory foam mattress topper... best money I ever spent!! I think I'll be sleeping much more soundly tonight. 

Owen got a couple packages over the last few days... he is so thrilled every time our phone rings because he knows he's going to get a package!!  Owen got some fabulous tracer books/activity sets from the Courvisier Fam, a fun box full of goodies from Intermountain Healing Hearts, a box from the Blutrich family with a disc gun and a box from the Atherton's with a Superhero dress up set!  Thank you all so very much for all your generosity.. it totally made Owen's day!!!  He now has a nightstand full of goodies. 

We did a little painting today so he can start decorating our room with a little art work.

With Owen's IV pump and bag he can't move far.  We are so used to having a long extension on his oxygen and he has freedom and independence.  His IV bag is way too heavy for him to carry since he's so weak, I have to carry it around for him.  So anytime he wants to move around or do something, I have to walk with him and carry his bag.  Not fun.  We are praying for a heart to come soon!! 

Tomorrow I will be a year older.  I am thinking we will take a long walk and see what we find.   Today started off pretty rough, but it's going to get better.  We just need to find our routine.  Thanks again for all the prayers and support.