It been a tough day for Mr Owen. He woke up feeling really stiff and wouldn't move either arms or hands. He kept saying his arms and shoulders were achy. We gave him Tylenol and he was excited to ditch the two IVs in his right hand just in time to head to preschool at 10. There were bubbles and trains, but he was visibly sore so he sat at the rice table and played.
Our new friend J. came in and sang to the couple kids that were there. Owen was so happy when they brought out a box of instruments so he could play along. He beat the cymbals together on beat for each song.. the boy has rhythm. It was great therapy for him!
He really wanted to walk to the library after preschool to return his books and check out new ones. Half way there his legs started shaking with fatigue so I gave him a little lift. He insisted on walking back to the room and wouldn't let me get a wheelchair or anything to help him. Such a tough guy. He was almost in tears when we got to the bed because his legs were achy. I got him settled in bed and he fell fast asleep for two hours.
Meanwhile, his new PICC line wasn't drawing blood and had a hard time flushing. Then we started to see blood, which isn't good. He was in a lot of pain and wouldn't even move this arm an inch. We had the vascular team come look at it and they ordered an ultrasound to make sure there were not clots in the catheters.
Great news... all was well... no clots. The worst part of the day was having the dressing changed and stitches snipped. The vascular team said the leaking blood was the stitches being pulled on every time he moved, which explains why he was in pain. Owen got a dose of Ativan to help with the anxiety and he did so great. It hurt and he was crying, but he held still and was super brave. Then he was pretty happy to get a Spiderman Spiderweb on his arm after. ;) His arm is feeling much better and he's even starting to use it a little. With the change in direction and movement of his arm, we have a perfect flush in both catheters and we even got his pre-ivig labs drawn. Such a relief.
He got to play Wii for 2 hours tonight in the tech center of the play room. It was a nice reward for a really brave boy.
We came back to the room, changed into jammies, then had some facetime with Sis and Daddy.
It was the best ending to our crazy day. IVIG round 11 is starting now.
7 comments:
So glad that he is in less pain. Praying for you guys non-stop.
Andrea- Just want you to know I've been following along (but rarely, if ever, take time to comment), and that we are praying for you guys. I just want you to know that I think you are such an amazing mom- to both your kids. I am in awe at the great job you have done caring for Owen- just look at him- showing up to the hospital looking like a million bucks and sporting such a funny sense of humor. You are doing a great job. Keep it up! Hospital life and life apart from the rest of your family is so tough, but I admire you for what you are doing. Take care! Love, Robbie
Tough guy indeed and very brave! {{{HUG}}} Praying today is a much better day for Owen and more pain free. Glad he got in a little Wii time!
Owen you are the bravest person I know! We are sending lots of love and tons of hugs to you everyday!!!!!!
What a brave little guy. Hope today is a little better.
Hugs to you all. My heart is with you.
Aww God Love Him! Thoughts and Prayers for you and sweet Owen. What a strong little man.
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