We have had a busy day in the PICU. Well, not super busy, but you know what I mean. Owen relaxed most of the morning watching all the movies they have on the TV. There is an awesome entertainment guide on the TV with just about 40 movies to choose from. We are on our 3rd time watching AstroBoy, Wall E, and Mars Needs Moms. We took our giant double pole IV pump, oxygen, the stroller and Mr Owen to the playroom after he took a long afternoon nap. The germs freaked me out and so we didn't stay long, but borrowed a few toys to disinfect and bring back to our room. I think we'll just play in the outdoor gardens and playhouses from now on.
When we got back it was time to eat lunch and stay out of bed for a bit. With his IV tree and all his leads, he is a tangled mess.
The children's hospital's cafeteria closes at 3pm on the weekend so I walked the mile long (exaggeration) walk to the Stanford hospital to grab some dinner. When I came back, the nurses were in Owen's room listening to his version of Popping Tags. He is the resident rapper tonight... serenading everyone with hip hop and a little Les Mis. He's nuts.
Dr Rosenthal came in this morning to check on Owen and he was here for rounds. Owen's blood pressure was low last night 70/30, but only when he was sleeping. He had been awake for 2 hours and his blood pressure was back up to his norm of 90s/50s. The plan was to increase his Milrinone dose to .5 and monitor his blood pressure for a few hours and then move him to the Step down unit for a few days.
Owen's blood pressure remained super low all morning, so we decided to just keep him in the PICU for another night of monitoring. Now that it's 6pm, his body is adjusting better to the larger dose of Milrinone and he's up to 105/48. We also have all his Captopril out of his system which causes lowered blood pressure, so it may have been the combination of the two together? I don't know. I'd rather him be closely monitored in the ICU for another night.
The best news of the day, depending on how you look at it... Owen is officially 1A on the transplant list!! A new heart could come anytime, or it could be months away, all I know is that he is stable and doing well and for that, we are grateful!
We plan on having a relaxing night. Hopefully Owen will go to bed before midnight. I also hope his nurse is a good one so I can head back to the hotel and pack up for an early morning checkout and get some sleep in a real bed. I am grateful that Owen is so comfortable in hospital environments, especially the ICU.
Saturday, June 15, 2013
Subscribe to:
Post Comments (Atom)
4 comments:
It's good that he's comfy enough for you to leave him. David was too at his last surgery. It made me happy yet sad at the same time.
1A-takes my breath away.
So grateful you feel safe and trust. You know the best decisions will be made every step of the way for Mr Charmer :) Prayers of gratitude. Sweet dreams, you two! Happy Father's Day to Carson tomorrow!
Hi,
So sorry I didn't leave you an easier way to contact me! I am so happy to do Costco runs, bring meals etc...whenever you want. I go to Costco at least once a week up there. My husband has a pretty flexible schedule and my MIL is coming for TWO MONTHS so I am hoping I am more flexible too. Contact me anytime if I can help. I will be praying for your family!
Jane
jmklola@yahoo.com
A heart transplant is a procedure in which a surgeon removes a diseased heart and replaces it with a donor heart. survival rates by statistics are as -
About 81% survive for at least 1 year. About 75% survive 3 years, and 68% survive 5 years. About 50% survive 10 years. The figures simply mean that one has to avoid some risk factors for a better life.
A major risk from heart transplant is rejection of the donor heart, .- You may be on immunosuppressants (anti rejection medications) to prevent this. The immunosuppressants actually suppress your body's ability to fight infections, besides it's main function to prevent rejection. An infection can trigger a rejection. But you can take care of this in the following ways -
1) Have regular dental checkups and maintain good dental hygiene as your mouth is a potential source of infection because so many bacteria and fungi are normally present there.
2) Do not smoke
3) Avoid lifting weights for at least 10 weeks
4) Drink clean water (boiled/ filtered)
5) Eat well. Eat hygienically prepared food (preferably home food). Avoid as far as possible, eating from outside
6) Exercise - as advised by your doc
Most important! - Think positive and be cheerful. Even infections can be kept at bay with a positive attitude.
Wish you all the Best of Health and luck
Post a Comment