Sunday, June 23, 2013

My 34th Birthday

Today was my 34th Birthday!  I missed my hubs and Kam sharing the day with us, but we made the most of it.  We ventured out to Target and bought some food to get us by for the next week.  Lots of healthy, quick grab meals like Tuna, BLTs, turkey and produce. 

This is the view from our RMH room... that,my friends, is Stanford Shopping Center.  Thankfully I am too poor to afford to shop at 99% of the stores in the mall... Juicy, Cartier, Neiman Marcus, Rolex, ect... not happening.  I do love all the little shops, restaurants and gardens around.  It's a beautiful mall and Owen loves to walk around.
Owen preferred to do a lot of laying around today.  I am not seeing any noted improvement in his cardiac output since starting Milrinone, but maybe he just needs more time.  He is still so sore from his hour in the cath lab.  Bruises all over his little body and he can hardly transition from sitting to standing.  I can't lift him under his arms without him wincing in pain.. poor guy.  He doesn't hurt where the actual PICC line is placed, but moreso where there were numerous failed attempts.  :(
Tonight an organization brought in a yummy taco bar for dinner.. the guacamole was fab!!  Then Owen and I walked over to Sprinkles for a couple birthday cupcakes.  Having a Sprinkles staring at me in my window each day can get dangerous, but this was my first visit and I will have self control. 
Owen and I are getting settled and finding our routine.  There is a different organization bringing in dinner each night this week.  We are so very thankful for all the volunteers and kindness from complete strangers.  It is not easy living with 45 other families in one house, but we are so grateful for an affordable roof over our heads so that Owen can get the healthcare he needs. 

I don't know if I posted this on the blog before or not, but Owen also has a Facebook page... Owen's Superhero Heart.  I sometimes do updates there when I don't have time to update the blog.  The last couple days have been emotionally draining so I haven't updated as much as I would like. 

Tomorrow starts a new week and hopefully Owen's lost iPad will be found. 

5 comments:

Ben and Robbie and family said...

Happy Birthday Andrea! I'm amazed that even on your toughest days that you still find things to be positive about. I'm so sorry that you've had to spend your anniversary and your birthday without your whole family together. What you are doing for Owen is selfless and wonderful, and one day, I'm sure you'll look back fondly on this time together (but I'm praying it's short and sweet before you get the call!). You guys are in our prayers. P.S. You totally deserved that Sprinkles cupcake. I'd probably make it a weekly tradition.

decnic said...

In my thoughts daily. Thank you for sharing.

Stefenie said...

Glad to hear that you and Owen had a good day yesterday and that you treated yourself to some very yummy looking cupcakes. I think you deserve a little cupcake treat at least once a week.
RMH is a wonderful place and I have volunteered at ours in the past with a group of heart moms. We did all the household chores that day for the families and brought them a bunch of home baked goodies. It's great that there are many volunteers at yours bringing in some meals to help out families like yours.
Always thinking of you guys! <3

The Smith's said...

Happy birthday, Andrea! I'm nearing the end of my 34th year so can tell you it's not too bad ;) And just think, this is almost certainly the year your beautiful boy gets a new heart!!!

Tracy said...

Happy Happy Birthday! I'd make trip to Sprinkles everyday! Hope you had a great day knowing so many are thinking and praying for you and Owen!! You'll really have a great reason celebration next yearwith your whole family and whole heart. Prayers to you and your family!