It's already Thursday and I feel like this week has flown by! Owen has been taking several walks a day and loving his freedom.
He wears his yellow isolation gown like a rockstar! Tuesday we made a few laps while talking to GI as we walked. We went over his whole GI history and came up empty. His poor tummy has just been nauseated, so much so that he couldn't do much yesterday. We attempted an elemental formula that has broken down proteins but he just puked it up. At least he doesn't puke on his blended foods... and it's real food so I feel better about it anyway. This morning was the first morning he didn't wake up nauseated so we are celebrating!
Wednesday we had an Echo, Ekg, PICC dressing change and Bingo! Owen's echo looks pretty decent and his EKG was normal sinus rhythm. His dressing change was better than last week but he is still so anxious. We have tons of labs pending right now but praying his ANC continues to increase and his other meds stay within range.
This morning I dropped off my rental car and had my first Uber experience. I may actually take a shuttle or walk to the RMH tonight. :) Perhaps I should buy a bike and then I'll really fit in around here.
Thanks to Jennie and Tyler for the delicious peaches...
Owen got outside and was so thrilled.. until he got hot and wanted to go back to his ice cold room. At least he felt some sunshine for about 15 minutes. His likes his "habitat" freezing cold and dark.
Back home the back to school preparations continue. Kam got her official parking pass and the girls showed Tate around the High School. Logi ran around calling out for Kam.. "bo.. booooo". At least I have a long time before Logi is in HS.
Logi is going to be SO very sad when these teens go back to school next week. They are so good to this little munch and love on him all day.
Kam got her hair colored and cut yesterday and we'll get one more pedi when she comes up for the weekend. I'm so excited to have my babies back!
Summer vaca is coming to an end. At least Logi will have Sammy the Beagle to keep him company.
Counting our blessings.
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2 comments:
Hooray for breaking free to the outside for a sunbath and fresh air.
Everyday making new progress and the walking helps and answered prayers.digestion.
Prayers for a happy tummy and all good lab results.
Wondering out loud if a double diluted elemental formula with blends added would work. Not sure what the main "nutrient" need for Owen is at this time (fat, protein, carbs etc), but we double dilute an elemental formula and then add 2 stage 2 containers of baby food- a fruit and a veggie, juice, pedialyte etc to it. The double diluting was the key though
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