Owen has had plenty of good days in a row. He continues to gain weight appropriately and I think we found his perfect balance of diuretics. His labs all came back looking pretty good yesterday. His BNP (heart failure number) is at 4300 which is elevated but great considering.
His WBC is increasing slightly but his ANC (Absolute Neutrophil Count) is dropping still.. no idea why. The hemocrit and hemoglobin is increasing so the increased iron and Epogen shots are doing their job. Owen's goal in rounds is to have them switch his Epogen injections to IV.. he isn't a fan.
We spend our days playing card games, doing crafts, reading books and watching movies. We wait...
Back home this girl is at Summer Scrubs. I don't know if I wrote about it, but she was selected as one of twenty four students (out of hundreds of applicants) to be a part of the U of A summer scrubs program. She spends 7 hours everyday at the downtown campus getting a crash course in Med School. She is making friends, learning about medicine and enjoying every minute of it. #myfuturemd
This little guy has been hanging at with his cousins. Ry, Tate and Connor are having a memorable summer with a toddler around. These kids are going to be THRILLED to start back to high school in two weeks... they will get a rest from their summer with Logi. :)
Kam took Logi to Costco and sent me this photo of him wearing her Ear Cuff... I think she needs a sister. (not happening)
I'm feeling pretty darn blessed right now.
Tuesday, July 19, 2016
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5 comments:
Keeping you in my thoughts and prayers, I can only imagine being in your situation, so I just pray for your to have strength, faith, and patience, knowing it is all in God's hands and he will take care of you.....all of you, all I can do is pray....and I do. We have a friend here in Texas who is on the transplant list for a new set of lungs, two times within the last week they thought they had a match only to find out, no, not this time, so they wait, and I pray. So just know even thought I don't personally know you or your family, you are high on my prayer list and I ask others for prayers for you and your family....you do have a beautiful family, and you are so blessed. A friend in East Texas, Pam.
Owen! your teeth are coming in very nicely and I see you have been brushing like a good guy :) The tooth fairy is very proud.
You are learning about Patience very early in life and this will help you as you grow older.
I say a special Prayer for you each night and can't wait til I see you smilling with that new special gift from an angel.
{{Big Hug for you}}
Kam will be an amazing Doctor. I think Pediatrics will be her specialty ;)
Yay for good days and counting your blessings. Continued prayers for a heart!! #prayersup🙏🏻❤️
I'm sure the dietitians there have suggested this and I know he has previously done well on his blended TF but have you tried one of the commercial elemental TF as a way to get him completely off TPN? Forgive me if this has already been tried or I've missed something and he's already receiving one. Just a thought
so glad for a string of good days. So Proud of Kam and I know you are
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