It's no coincidence that people are placed in our lives for a reason. In 2013, while living at the RMH, we met Grey, Liz and Sebastian. A toddler with HLHS, just like Owen, waiting for his heart. His path took a different journey and he ended up with a successful Glenn and Fontan. Liz and I stayed in touch on FB and they happened to be admitted to the CVICU at LPCH just two weeks before we were. Liz was walking by Owen's room as he was coding and I fell into her arms. Today I held her as she got the worst news of her life. Sebastian went to be with Jesus and the pain I feel for Liz and Grey is deep. Just yesterday he was riding in his wagon coming by to say Hello to Owen. Liz comes by daily for a talk. Our rooms at the RMH were right next door and I had dreamed of the boys playing at the RMH together. The pain is so piercing. Keep them in your prayers and never take a moment for granite. Life is so fragile.
Owen has been sad this afternoon but he knows that Sebastian is with Jesus "feeling no pain or pokes because he is fully healed". My boy is wise beyond his years. I celebrate every little moment I have here and I pray for another day each night. Hug your babies longer, read an extra story, play just another round of the same board game. Tomorrow is not promised.
3 comments:
Damn it, this brought tears to my eyes. I cannot fathom the pain, but the pain I feel for them is real. I sat outside when you went in, and just prayed for peace. This is probably the worst thing that I've ever known to happen. I feel helpless, my words are so small compared to the things they're longing for. I cannot give them what they need, or want.
I'm so glad she found someone that meant that much to her, for her to specifically call for you shows a great deal of love and comfort.
I'm praying for you tonight along with them, I know you've become like family. This is a hard tragic event in many lives.
Such a tragedy to lose a child. Praying for you and Owen. Praying for Sebastian and his family that they may take comfort knowing their little boy walks with Jesus now - no more pain, no more pokes. My heart breaks for all of you. I will hug my children tighter today and allow them that 2nd scoop of ice cream. Thank you for reminding me that tomorrow is never promised. #prayersup🙏🏻❤️😢
So sorry. I will be praying while you and Owen grieve alongside his family. No, tomorrow is not promised. I've been reminded of that myself as I prepare for spine surgery next week. It does make one more mindful about giving goodnight hugs, saying "I love you" when hanging up the phone, and just in general being more patient and kind. Trusting that if we don't see tomorrow, we see Eternal Life!
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