Weekend Fun

The past two days have been great. Carson flew into town Saturday morning and we have been busy spending time together. Owen is doing great!  He is getting chubby with all his nutrition and I just want to squish his belly.  He is on a Ghostbusters kick and had to buy the new Ghostbusters Lego set to build with Daddy yesterday. He is going to be SO sad when everyone goes home this week.

This little monkey has been keeping me super busy.  He is super active like his Mama and likes to be on the go.  He loves the little fountain atrium in the middle of the hospital so we go out there a couple times a day to run around, throw rocks and eat dirt.  Sometimes we stop at the gift shop for Rolos to snack on too.

The bond between these two is so wonderful.  Saturday afternoon the girls and Larissa took the Caltrain to San Fransisco to hang with Janesa.   That night when I got back to the RMH with Logi he walked around the room yelling "BO? BOOOOWWW?"  He loves his Sis!  We snuggled all night and it was pure bliss.

 

The girls took the CalTrain into the city on Saturday afternoon.  They rode the BART, Uber, and took a cab all in one day.  They went shopping at Union Square and hit up Japan Town for some Japanese goodies.  They all slept at Auntie Janesa and woke up Sunday morning to hike Muir Forrest.  They were exhausted and Kam's feet were sore, but they had a great time.

On Sunday evening.. Ry and Larissa kept Owen company while we went out for an (almost) family dinner.  Of course we were missing Mr Owen, but it was simple and fun to be out together for dinner.  Logi was a crazy monkey and painted ketchup with his French fries, but it was good to get out.

It's now Monday evening and this post took forever to write. Owen had a rough day.  Daddy flew back to AZ and I had a good meltdown in the hospital bathroom.  Everything builds up and you just have to get it out.  Owen is pretty anemic but we don't want to give him blood as it can cause issues with his antibody sensitization.  We started Epoetin injections this afternoon to help stimulate red blood cell production.  I also started him on enteral Iron supplements.  Crossing fingers this will work!  His white blood count is still very low, but we have to be careful with that because we don't want to cause rejection of his current heart.  On top of that he is pretty fluid positive, so we had to throw in a dose of Diuril to help.  He is up to 53.5lbs which is significantly higher than the 47lbs he weighed when we were admitted 7 weeks ago.  He puked a couple times but he is feeling better this evening. He had an emotional day as well with the new injection and feeling nauseated.  Tomorrow will be a better day....  praying for a heart soon.