It feels so good to be back at the Hotel tonight!
We had a room to ourselves last night and each us of got our own hospital bed... talk about spoiled. We were discharged this morning with just enough time to go back to Owen's cardiology cinic appointment on the first floor of the hospital. After four hours in clinic, we finally got to chat with Dr Rosenthal (Owen's Cardiologist).
They are impressed with his weight gain over the last week, but nothing is as impressive as his great cath results! Owen is a rare example of a kiddo with HLHS that can have such improved pressures and function, in such a short amount of time. Either they continue to decline or they need intervention. Dr Stock has always said "it can happen, I have seen it happen."
With that being said, he will most likely NOT be a candidate for the Fontan at this point. The risk is too great. Unless of course, there is another miracle! Regardless, we have committed to transplant and when the time comes, we will move forward. Until then... we don't need to followup with Dr Rosenthal for SIX months!!!
We will continue to see Dr Stock (Owen's Phoenix Cardiologist) frequently. We are also going to work on trying to wean him off his oxygen. Wouldn't that be fantastic?!
I am so excited to go HOME in time for Halloween! We will spend the holidays together as a family, celebrate both kids birthdays and enjoy watching Owen just be Owen!
Carson and Kamryn fly into San Jose tomorrow afternoon and we can't wait to give them the biggest HUGS!! We have the night tomorrow to visit a pumpkin patch and enjoy a FALL night in Palo Alto. We'll drive home early Saturday morning so that we can trick-or-treat at HOME on Halloween!!!
20 comments:
Saw your comment on MckMama's post and am glad to hear your sweet Owen is doing so well! I will keep Owen in my prayers. He is adorable! Glad you are home.
God is Awesome! So happy for you guys!
Andrea--excellent news on the cath lab. Wish we could have seen Owen when you guys were here. Enjoy the time with your husband and daughter.
Jeff and Lisa
This is such amazing news! I am SO happy for your family. :)
Jen
SO glad everything has turned out so well. Enjoy your time at the pumpkin patch, Halloween, and birthdays. :)
*!!!There's Place Like Home and Fantastic News!!!*
with Hope,
~ Chris A ~
I can feel you smiling! Hooray!!
So happy to hear the great news! Have a safe trip home and a fun Halloween with the family together!
Jane : )
I have never had a prayer fail and I am so glad this was not the exception. I do believe in Miracles, just ask Paul Cardall! ;)
My heart is singing with joy for you and your baby boy.
Have a wonderful trip home and an awesome Halloween!
Good boy Owen xxoo
I think that you try to brace yourself for bad news once you've had a string of it. It makes good news even better when you're prepared for the worst. I'm so happy for you. Life is good!
BESTEST NEWS EVER!!!!! YES, yes, yeyyes!!!! High fives..
I am so smiling right now!! Love that little boy of yours!
The news just doesn't get any better than that!!!!! So happy you guys are going to be together for Halloween...can't wait to see their costumes!
Have a fabulous weekend!
What Awesome news!! YAY OWEN!! What a trooper he is!! So happy for y'all and that your separation was not as long as you thought. Have a very happy Halloween!!
Great news and I am so glad to hear it! I will still keep Owen in my prayers! So glad you will soon be back with your family and get to go home!
That is fantastic news. I am so happy to hear the appointment went well and you guys are heading home. I can't wait to see Camryn and Owen's Halloween pictures. Hugs to all of you for a happy and safe Halloween.
This is awesome news!!!! Yeah for Owen!!!
Hurray! Hurray! Hurray!
Drive HOME safely.
I can see me smiling too!!!
The is Awesome new....SO happy he is doing so good
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