Every morning I wake up with an idea of how my day will go. I plan out my day to down to the very last hour. Today was the first day of fall break and I had a productive day planned. Today was the day that we would get all of our errands out of the way, the laundry caught up and the house in order.
I realized my plans were going to fail miserably at 9am when Owen puked down the back of my shirt as we were getting ready to walk out the door. Awesome. So he's not tolerating his feeds after all.
We showered again and ran out the door to run just two of the most important, don't need to get out of the car, errands.
When we got home, we had two hours to get the house all cleaned up and laundry started before Jessica (PT) got here. I laid Owen down for his nap. As soon as I said "night-night", he puked again. All over the clean sheets. Sweet.
Another shower.
Dang it... it was time for another feed. I spent the next hour on the phone trying to get Owen's Viagra ordered from a specialty pharmacy in Ohio. Our insurance will only pay for the prescription if it is compounded through their specialty pharmacy. It's lame. Anyway... I think the 5th pharmacist figured it all out.
The doorbell rang... time for PT. Owen was mister moody and didn't want to participate in physical anything. He started to look a little blue and his sats were in the high 60s and dropping. Owen solved. He felt better after we cranked up his O2.
By now, it is almost 2 and my day has been less than productive. Owen crashed while Kamryn and I ate lunch.
Now it's time to hit up Walmart because there is a new Pokemon DS game out today... "I totally need it Mom!" She seriously deserves it too... she has helped me clean up puke, keep an eye on Owen while I rotate laundry, cuddled him when he was supposed to be napping while I talked to pharmacists on the phone... the list goes on and on.
Then it's off to the park for volleyball practice, dinner and bed.
Just another day in our life.
Monday, October 12, 2009
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11 comments:
I'm confused... Viagra... for owen?? WHAT in the world.. lol?
*megan from wi*
Viagra's original use was for pulmonary hypertension... it was just "discovered" along the way that it also helped men get an erection.
Just like Topamax (the migraine med) is actually a seizure med.
Andrea... don't feel bad about not tolerating feeds... Kyleigh is 3, will be 3 years post op from her two OHS in February and STILL she can ONLY tolerate 60 ml/hr or a bolus of 245 ml.. period.. ever. If you do more... she will puke. We have tried EVERYTHING to get her stomach "expanded" and its just NOT budging. Oh well... she lives and gains weight on this rate so we leave it be...
I am so sorry you have had a crazy day, and so sorry Owen isn't dealing with his feedings well...I pray for y'all daily!!!
Love ya!
Wow what a day!! I am exhausted just reading all that. I hope tomorrow is a better one for yall.
Not only is Owen absolutely perfect but you have an amazing daughter too!!!!!! She's such an awesome big sister!!!!!!!!
Hope tomorrow is alittle more productive and Owen is feeling better!
Huge hugs momma... rest well tonight. tomorrow is a new day!
Sounds like one of those days where you just need to turn on the tv and sit down. Sorry to hear Owen had a bad day, which equals to a harder day for mom. You're in my thoughts and prayers. When is your trip to San Francisco? Hope your plans are going well.
Mary
I know you get a lot suggestions...but, would you like one more??
My Isaac was a constant thrower-upper (like 20 times a day). I did find that when his sats were low...he couldn't tolerate feeds (adn the gi said that made sense)...but, when he'd have those yucky days...I'd start him off with only pedialyte...and then with each feed, add about an ounce of milk. I KNOW that takes away all the calories..but, if they're constantly throwing up...then, they don't get any anyway.
Hope he has a better tomorrow.
Kathy
what would you do without Kamryn? I ask myself all the time how I'd make it without Abby. They are our saving grace I think!
Wow, what a day! I am sure it was exhausting, but I am so glad that Owen has such a good Mom and big siter to take care of him! (I am sure Dad is a good help too!) Praying for precious Owen and your family!
Ya just love those days!! I am sorry. I slowed Daxtons feeds down because he has been throwing up lots, tonight I am putting him back on full feeds so we shall see. I hope tomorrow is better and you don't have any throw up down the back-that seriously is one of the worst feelings ever. Hope you enjoy your game-you all deserve it!!
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