He's Back!!

Owen woke up a new babe!! He still had his 2am insomnia (no idea what that's all about), but he's back!!! He is happy, butt-scooting around, eating, playful and we are thrilled! He must've heard me talking about calling Dr Stock today, and he perked right up.

Thank you for all the advice on constipation relief (that sounds gross). I actually put a few ounces of prune juice in with his night feed so it dripped slowly while he slept. I don't know why I didn't think of this before?! Usually I give him prune juice in a bolus feed and maybe it was irritating his tummy more, where the night drip is continuous and feeds him over several hours. Whatever... it worked.

Owen had his speech evaluation today and, of course, was Mr. Social at his best. It's always hard to hear those developmental questions.. "does he turn around and look for you when you say where's mommy?" Nope. "Does he initiate play, like bringing books over to you to read to him?" Nope. Nope. No again. I know he'll catch up, but it breaks my heart to know that he has to work so hard to do simple things, like talking, eating, playing. I hope that with a new, whole heart, he'll finally start to thrive.

I didn't take any pictures today because we were busy playing with our happy guy for the first time this week. Here's a picture I took last year on July 15th.
Hopefully we have a few more weeks of Happy Owen before he hits another down period. He definetly has been on a two weeks UP, then one week DOWN. I have two more weeks of increased Captopril to max him out and then we'll introduce his Carvedilol. Then, work on getting that to a maximum dose. I am anxious to see his echo on Aug 18th to find out if all this treatment is having a positive impact on his heart failure. Praying it's not making it worse.