For the first time in 19 months.... NG and white tape free Owen!
Owen is starting to feel better. He was pretty sore for a few days and is still getting used to his new button.My little eating machine decided he didn't like that title and went back to his old eating habits, which is okay by me. I don't like to eat when I don't feel well either. With a failing heart, 75 percent oxygen saturations and massive amounts of medicine being pumped into his tummy throughout the day, I don't blame him for not wanting to eat a whole lot. The great news is that his eating skills continue to improve and since the NG was pulled, swallowing is much easier.
There isn't much to report because we have been taking it easy the last few days. Lounging around the house, taking naps, taking self portraits, or attempting to.
The next couple of weeks are super busy with followup appointments, shots and therapies. We are all counting down the days til' we go to California on our much needed vacation and Stanford transplant followup visit.... 27 days left!!
16 comments:
Beautiful sweet baby!!! I love being able to see more of that face. Warm NY thoughts to your whole family.
My goodness, he is so beautiful. Your whole family is. Thank goodness he's doing well!
Prayers from the S Club going out to your family & especially the much needed vaca! Take in some sun for us.
So gald to hear that all is going well with the new g-tube! You will love it and as you have seen already, I'm sure he will eat much better! Love to you!
Suzie
He looks so happy! What a trooper! Nice to hear you guys are having a few relaxing days!
Oh how I remember those many days of good eating and then days of hardly eating and all and my unnecessary worries about it all. Now I hear it's normal for tots.
That picture is priceless, he is so proud and his cheeks are so happy.
Wishing you all a great week and a fun,safe visit to California :)
Just when you thought he couldn't get any cuter...:)
that is one beautiful non-ng tubed face!!! Glad to hear that the soreness is starting to loosen up!
What a handsome little man! Does he love his freedom? Oxygen is so much easier if it gets pulled out! I hope Owen is back to scooting everywhere in no time!
Lookin' good, little guy!
I got my PEG way back in February. Far as I can work out it's the single best medical decision I've ever made. I'm free to try to eat/drink as much as I want to but I'm no longer struggling with dehydration or trying to pick between good nutrition and healthy lungs. Few days of pain when it was brand new and I've never really looked back. Just check if he's got a longer tube that it's not left dangling at sitting-on length because that's really not a good sensation At All. And I'm almost totally non-mobile. Heavens knows how the walkie types manage it.
Anyway, I am rambling and should get back to benign lurkerdom. I wish you well to wear your new orifice, Owen.
What a CUTIE!!!
Whoo hoo!
So stinkin' cute, as always.
Well hello handsome little man! It sure is nice to see more of your face. :) Doesn't it feel freeing to have less stuff on? (It certainly looks it!) Have fun lounging with your mama!
What a wonderful picture!!!!!! Hope you all find some time to relax this week and get a break in between all the appts. Hugs to the handsome boy!
I'm so happy for little Owen. That first picture is great. He looks so happy to have that NG tube gone!
What a little cutie pie! He looks great without the NG :)
Congrats on your new and improved Handsome boy! So glad he is feeling better.
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