Carson and I met with the Phoenix transplant coordinator this morning and she gave us ALOT of information about hospitals, surgical teams and transplant facilities. What a HUGE decision!! I came home and looked on UNOS.ORG, which is the national organ sharing website, and learned of the hospitals statistics. Click HERE if you're interested or bored... it's fascinating! I searched from LA to Boston and found that the statistics aren't that much different. Some hospitals do MANY more pediatric transplants than others, but I have no idea of the skills of their surgeons or medical team. I'd like to think that they are all amazing, trustworthy, qualified... BUT... they are possibly going to be removing our son's heart!!! That is frightening and we have to choose the best team to do that.
I'd love to travel ALL over the US visitng all the facilities, meeting with the staff and getting to know the area that I'll be living for who knows how long. Ok... that's completely impractical... SO we are going to discuss things over the weekend and narrow down to 2-3 locations to have cardiology send over all of Owen's medical records. We are told it should be around two weeks before we hear back from those facilities. If they feel like they want to take Owen on... we'll take a little vacation and have Owen evaluated. Our major considerations are; locations, medical staff, and statistics of tranplants. We go from there.....
Thursday, November 6, 2008
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15 comments:
We will be praying the best happens for you and Owen. I believe in miracles. We love you.
Continuing to pray for you...and, as always, for Owen.
Heart hugs & love~ Rebecca
WOW - what a huge decision! I wish you the very best with that.
You all are still in our prayers... so many decisions... I will pray that God leads you to the best place for Owen!
I am here, if you need to vent!!
afgk03@gmail.com
Goodness, so much to take in & think about.
I am totally serious, if you end up at Standford, you & your family can consider our house your home for as long as needed.
Keep us posted!
Oh Andrea, My heart is with your family during this time. I know you'll make the best decision and everything will work out ok!
You are in my prayers. I know you'll make the best decision for Owen. It's not an easy one, but I believe in the power of prayer and miracles. Owen is a strong little boy.
Sending prayers! How all goes well.
We are praying for you! You need to look at Kaidence's blog off of Mason's she recieved a heart last december and is doing realy well!
With love and concern, Summer and Mason Strickland
We will keep your sweet family in our prayers.
Sincerely,
Kierra Bryson's mom
Hey, Please do email me. tellebelle@gmail.com. I would love to help with anything. I hated the thought of being the one to choose the hospital with Kaidence. WE had to choose between Denver and California. They would send us to Lomalinda(sp???. Luckly we were able to get it done at PCMC. So much stress comes with those decisions. Please let me know how I can help.
Shauntelle
I just read your comment and was so excited that you may have Seattle has an option! We live 3 hours from there but I'd love to help you with any arrangements that need made if it works out for transplant there. I believe there are 7 waiting right now...seems like so many. Mia's blog has more information on this. Hang in there. You're in my prayers and I know the Lord will lead you in the right direction with this tough decision. Take care! Hugs to Owen and Kamryn is an AWESOME artist! I taught 3rd grade before having kids and she's truly talented :)
Love,
Katie
Good luck with your BIG decision! Our prayers are with you.
Wow!!! It is crazy to hear of someone about to enter the lifestyle I have been living for the past four months. I am very interested in your choices of facilities. I would love to talk to you if you want any insight into my world of waiting. Your kiddo is so super cute... these heart babies are heart breakers I'll tell you what!!
You can call the ICU at Childrens- I live here ;-) 206-987-2040.
Oh man! Don't you wish this is one of those things that someone would just tell you what was the best choice?
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