We got the dreaded call....
I'm taking Owen to Phoenix Children's to be admitted NOW! They have his room ready and waiting. I guess they didn't like his echo. They want to get him started on Milrinone and speed things up with LA. I'll be living in PICU E again ... cruddy.
I asked if we could just bypass going to PCH and leave tonight for LA?? They don't think it's safe to drive with him in the car for 6 hours to LA... they want to airvac him when ready.
I thought I was prepared for this next journey and find myself totally LOST!! Kamryn keeps asking the logical questions that I never think about...
"When are we leaving for LA?"
"Will I go with Daddy?"
"What about School?"
"My school program is tomorrow night... will I miss it?"
"Will we have Thanksgiving in LA?"
I wish I had answers... maybe tomorrow??? For now... I will allow myself to cry! I know it's redundant... but PLEASE KEEP PRAYING!!!!
Tuesday, November 18, 2008
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23 comments:
I hope so much for you guys that this next journey goes smoothly. You will all remain in my prayers.
Jen Wright
Andrea...My thoughts are with you and your family!
Andrea I think about Owen all the time especially since he and Cora are so close in age and have such similar problems. Dana and I will keep you and your family in our thoughts.
Goodness this is happening so fast. I am so sorry. It is shocking to read this because like you said, he looks great & so happy! Hope you get some answers soon to all of your questons.
Praying for you!
Just take one day at a time. You never know what miracles tomorrow may bring. It may not always seems like the miracle that you have dreamed about, but after some time it will become beautiful. I wish you the very best of luck on your new jounrey. Know that you are not alone and that I am here for you. I pray that the medication will sustain your cutie and that he will not have to wait long for his angel heart. Bless our oragan donors.
With Hope, Faith, love and PRAYERS,
Kaidence's Mommy
Andrea- I've been thinking about your family and little Owen all day long. I'm so sorry for your recent news. We will keep our fingers crossed and remember all of you in our prayers.
Oh Andrea,
I so wish I could have seen you today at the pediatrician's office, if for no other reason but to give you a great big hug. I will continue to pray harder than ever for sweet little Owen, but I will also pray for you that the Lord will shower you with comfort and strength at this difficult time. I still believe that Owen will amaze everyone!
Keisa
I'm sorry I don't get to keep up with your blog as much as I used to. School is taking up so much of my time these days. My heart goes out to you and your little family. I think it is amazing with all that you have gone through and are facing, that you remain so positive and that Owen remains so happy. We will be praying for you.
Andrea,
I'm so sorry...that was not the news you were hoping for. May you find comfort in knowing he's still a happy little guy and that things will really get rolling for him now. Praying for your sweet family!
Lots of love & hugs,
Katie
Your strength is amazing and I have no doubt that little Owen will pull through this next hurdle with flying colors! Your family and sweet Owen are in our prayers right now and always. Just think, he'll no longer have a 1/2 heart like so many of our HLHS babies. His will be wonderfully whole! In prayer at this moment for a peaceful night for all of you as this next journey begins. Please keep us updated on Owen's progress.
Love,
Kerri and Mary Clare
My heart aches for you and your family. What a scary and crazy time. You will all continue to be in my thoughts and prayers.
Oh my gosh, I know that is the last thing you wanted to hear and it must feel so overwhelming and FAST. I am just so thankful God has allowed kids like Owen time through medication and hospital care to wait for a beautiful new heart. I know that God's timing is perfect and that He is already working out all the details that feel so scary right now. We will be praying MUCH for little Owen and for your whole family, that you feel unexplainable PEACE during your time in the PICU and then over to L.A.
Jesse (Luke's Mama)
You know what, it's not redundant, because little Owen needs our prayers. And I'll surely be a big supplier!! Good luck family.
OH, I'm so sorry! I'm sending prayers and hope that this will pass soon.
I wish there was something more I could do... We will be praying like crazy...I am so thankful that they were able to find out this information that will help Owen get better...I am glad they are not waiting for him to get "worse" and doing somthing now... HUGs....
Andrea, this is harmonie again, I hope all goes well with you'r little guy. I will continue to pray fo ryou and Just remember he said it wont be easy he said it will be worth it... Miracle's happen. keep smiling and know that I have thought about you and the million other people out there that have this everyday since I talked to you last. good luck Kiss Owen for me he is so beauitful
Dang, I was hoping it would be better news!!! Owen and your sweet family are always in our prayers, we'll keep them coming no matter what! Seriously try to take one day at a time, maybe even one hour at a time. You are so amazing and Owen is such a cutie. Please, please let me know if I can do anything to help. I could bring you lunch, does Carson and Kamryn need dinner?
Our Thoughts and prayers are with you guys. I know that the Lord is very aware of your situation and is watching over your sweet family. Sincerely,
Kierra (Brysons mom)
We PRAY...and you allow yourself to experience whatever you need to (crying, screaming, frustration, and so on are totally allowed and expected with all you have been through). Scripture tells us that when we are in times of not knowing what or how to pray "the Holy Spirit intervenes for us" and prays our prayers before we know it! I have been there and know that power...I am praying the same for you, friend.
It never gets redundant to pray for Owen...he is a part of our family just as all of you are!
Love and peace to you today~ Rebecca
You all are in our prayers!!! Keep us updated!! Sending hugs your way!!
I have such a love/hate relationship with the PICU. I love the care we receive there, but I hate when my child is there because he is sick enough to be there. I am so sorry. I know that lost, sick feeling you are feeling right now. It is so hard to put your life completely on hold...because we have no other options and all that matters at that moment is our little baby. I will keep Owen and all of you in my prayers...continually!
I'll cry with you! I'm so sorry!
I think the hardest part of all this must be the unknown. Also having to live away from home without the conveniences during a difficult time. Hopefully in a year you will be looking forward to the holidays with a happy, healthy Mr. Owen. This is a day of miracles and we will pray for many to be with Owen and your family. Love, Siri Holman
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