We're Finally Home

We adore this guy...these were some pics we took in pre-op. They had us in there for a few hours so we were finding ways to entertain ourselves. Oh... and I have I ever mentioned that my hubby is hilarious! I kept laughing, then I would cough uncontrollably ... then the nurses would stop in "are you okay? are you sure you're okay? can I get you something? are you sure?"

SEVEN HOURS LATER.... we were finally able to see him. He was in the cath lab for about 4 of those 7, but the vein in his leg was bleeding constantly for about 3 hours! The amazing Dr. Lamers stood over him the whole time applying pressure to his leg. They kept him intubated until about 9:00 last night... it was aweful! He was crying, wanted to be held, quivering... but we couldn't do anything for him. I finally got the intensivist to take the tube out and that calmed him down a bit. I spent the night with him and he whimpered, tossed and turned ALL NIGHT LONG!! I don't think either of us got more than an hour of sleep total.
He cried all morning, we took off his pressure bandages, started up his feeds again, got him comfy and off his back... poor guy!! This is why we don't use tegaderm anymore... look at his poor neck!! Daddy saved the day when he showed up .. apparently he was upset at me for doing this to him :(. We had to give him versed for his echo because he was just plain CRANKY! Then we had to wait for neurosurgery... that's right...neurosurgery! So, you may remember back about six weeks when we did a brain ultrasound to check the gigantic head of his for fluid ... everything was fantastic! Well, about four weeks ago, Owen developed a HUGE bump on the left side of his forehead and it hasn't gone away, never bruised, ect. We decided while we were already at PCH, might as well have the brain docs take a peek. They decided to do a CAT Scan. We took him down to the lab and they burrito-wrapped him, strapped down his head and put him into the huge machine... he didn't budge! What a relief... I wasn't about to do more anethesia.

Around 3pm, we were chompin' at the bit to get out of there and we were STILL waiting on the brain docs to review the scan... finally, we got word that it's nothing to worry about right now and they'll let us know if they want to followup. Not sure that's a clear answer, but I'm going to let it go and just LOVE on that big, bumpy head of his! An autograph here and there and we are now home... Owen is asleep... and I am in need of some serious shut-eye.

HEART UPDATE:
We are still completely confused about Owen's medical plan, but cardiology and surgery will have a conference on Monday to discuss a plan of action. So far, these seem to be the options....

1. Open him up and try once again to fix the tricupsid valve regurge... the chances of this are pretty slim. Also, he has a giant collateral steming off to the right of his heart, almost to his left shoulder and they can't get to it from a cath, so they would do this while he was open. Another thing they can work on is his Glenn repair. Where the major arteries meet, it forms a "T" shape and at the cross of the "T', there is scar tissue and narrowing, which is affecting his blood flow and pressures. They can open that back up and patch it. I guess the major question with this operation is... will it help???

2. Do another cath to try to stent open the "T" from the Glenn repair and go in from his left arm and attempt to coil off that large collateral that is taking blood flow away from the heart. The question still remains... will it help??

3. When and IF he will be a good candidate for a heart transplant and how to proceed with that.

All the doctors have different opinions, and the truth is... no one knows what will happen until we try it. It's a lot of risk to "try" something to see if it will work. What gives us peace of mind is konwing that the doctors all LOVE Owen very much and they will do what is best for him. We just have to put our trust in their knowlege and faith in Heavenly Father. Thank you for all your prayers and support... we definetly need it right now!! :)