Sunday Funday

It was a lazy Sunday around here.  Owen has been craving flaming hot Cheetos and that's pretty much all he will consume.  Last night he gave us a good scare.  It was time to change his gtube so his nurse came in to distract him.  When I pulled his old tube out, the stoma started leaking a bunch of red...which we initially thought was blood.  The nurse ran out to find a doc and I placed his new tube and dressing.  Long story short...it was undigested flaming hot Cheetos.  We still did a X-ray of his stomach to be cautious.  Owen enjoyed retelling the story with some dramatic flair for the team in rounds today.

Labs today looked pretty great.  His BNP was down to 7000 from 23000 on Tuesday.  His heart is happy on Milrinone.  The Resident asked the transplant team about discharging on Milrinone and I told them I'd be the first one to ask to get outta here on Milrinone but we are not to that point yet.  He is very high risk right now and we are where we need to be.

We did hook him up to the telebox, which is basically a traveling monitor, and walked to the playroom today.  Owen played Xbox and we grabbed a game to play tonight.  The library volunteer brought him a new movie and that pretty much wraps up our day.  I got to visit with Jennie...keep Tyler in your prayers as they have a big meeting tomorrow.  I also met another heart mom on the elevator...I'm so glad she introduced herself.  Her son is waiting for his heart and his younger brother had a transplant 4yrs ago.  It's these connections and support around me that makes the day a little sweeter.

Back home...

Kam and Ry volunteered for the Congenital Heart Walk in Tempe this morning.  It was a great opportunity for them.  I love that Kam wants to serve others and volunteer.  

Daddy took Logi to breakfast at Joes and let him run wild on the paths for a long time.  "Walka walka"... he loves to walk around and explore!  

More labs tomorrow and it's a new week. Wish me luck getting Owen to hospital school in the morning.