Today was a pretty crazy day. Owen had another good day so I'm excited about that! I don't know how he slept last night with the ECMO circuit running next door and all the commotion that comes with that. He never complained once and somehow managed to get some decent sleep. Child Life brought him some awesome Batman headphones today because a family was saying goodbye to their litlte one. My heart.
I had a hard conversation with the LVAD NP about options if Owen has a rapid decline. It's not the type of conversation I wanted to have, but it needed to be done. He is holding steady and we just pray it continues. He looks so good!!
He is eating more and even got up to walk around a little. I'm not sure how much longer we will hang in the CVICU, but as long as it takes for everyone to feel comfortable. I gave up my sleep room tonight for a more critical family and I have a reserved sleep chair. I also have a room at the RMH if Owen feels comfortable with me a mile away. I'm pretty sure I"ll be sleeping in a room with three other strangers.. but if it helps Owen sleep better than I'll do it.
He is holding steady in a happy place and we just pray it lasts.
Kam is feeling super congested and has a yucky wet cough.. she spent the day on the couch and all drugged up on Sudafed. I had her drinking EmergenC and Airborne with TONS of water. She already feels better tonight. Logi has been spending his days with Larissa and Sam (the beagle). He is a budding artist and will color for a long time. He knows a lot of his colors and knows which color he wants. Eek.. I just want to scoop him up and smooch on him. Soon.
Sleep tight.
2 comments:
I read this blog every time and I think of you guys often and the lvad conversation was almost surreal but im glad Owen is in good spirits makes it easier for everyone give him and you a hug from me
Grey
Don't forget to Breathe
Taking time to breathe deeply can dramatically affect your experience while your child is in the hospital. At the bedside, in a parent lounge, the hospital chapel, at home, or outside, try taking just 10 deep breaths. With each inhale, try pulling air all the way into your stomach and with each exhale, push out all the stale air in your lungs and in your body. As you inhale, breathe in everything you need–love, patience, courage, rest, strength, peace–and as you exhale, breathe out all that is troubling you. You might try the following mantra as you breathe:
When I breathe in, I breathe in Peace.
When I breathe out, I breath out Love.
One day at a time....Know in your heart you will soon be reunited with your whole family and you are loved!
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