Summer Days

Our first week of summer break has been good to us. We spent Tuesday and Wednesday working hard.  The house needed a good deep cleaning, so Tuesday was spent. I tore everything out of the garage yesterday, swept, sprayed for bugs and put things back super organized.  It was hard work for one person, but so glad it's done.  We went to lunch with our good friends, followed by a little Sonic Happy Hour in the afternoon. 

Today was a fun day at the water park.  There are a few great water parks around us and for $5, all four of us got in for a morning of fun.  Cousins and friends showed up to play and we had a great time.  Owen went from the giant bucket that dumps water, to playing on the playground in the water, then to the lazy river and back again.  No wonder I'm exhausted lugging around all 39lbs of Owen and his oxygen tank under my other arm.   We grabbed lunch on the way home and now it's relaxing time.

My favorite part of swimming and playing in the sun, is the cozy afternoons that follow. 

I got a call from Owen's transplant team at Stanford.  They were checking in and giving me the results of his last IVIG labs.  ZERO!!!  Amazing and wonderful!! He is responding so well to the IVIG infusions.  Since his antibodies remain at zero, that means he will continue to have no voids on UNOS.  I'm hoping once we bump him to 1A status, he'll get a heart quickly.  We discussed the plan for June 11th, but still don't really have a plan.  I am learning to go with the flow and that is SO hard for me.  The Ronald McDonald House won't know if there is a room available until 24 hours in advance, and there is NEVER a room available.  I have a hotel reserved as backup for a few days.  We won't know if there is a bed available in the Cardiac ICU until the day we fly in.  So basically, I need to just let go of any kind of control and just go along for the ride. 

Life is good.  We have dance dress rehearsals and dance recitals for HOURS over the next couple days.  Follow that up with family parties, Sunsplash waterpark day, and Liv's bday party.  We are crazy busy and it's all fun!!  I wouldn't have it any other way.  Summer is here!!! :)