In the wee hours of the morning, Owen and I will set out to LPCH at Stanford. This was the date we agreed upon to stay put, admit Owen to the CVICU and begin his Milrinone therapy. I am nervous, excited, and just really not sure what will happen tomorrow. Decisions will be made and I hope to have a long conversations weighing pros and cons with his transplant team. Please keep us in your prayers that we will all make the right decisions for Owen moving forward. Owen has been doing fantastic the last month since we were last seen and I just don't know what the right answer is at this point.
We are packing to stay, and I mean packing a lot! There is a bed available for him in the CVICU and a hotel for myself. We also have purchased a return flight home to Phoenix on Saturday, if it turns out we are coming home. Thanks for all the thoughts, prayers and kind words. :) Love you all.
Since all my camera memory cards have mysteriously gone missing over the past week (OWEN), I found this old one and cleaned it off onto my hard drive. I found these really sweet videos of Owen ... so sweet!
6 comments:
Good luck! I am a regular reader of your blog as well as another one with kids who have received transplants at LCPH. They are still in at the RMH, and I bet they would be a great resource:
http://jasonandstacybingham.blogspot.com/
Andrea, I will keep you, Owen and the transplant team in my prayers. I pray for all my transplant kids, as I call them, every night. Owen, Teresa, Rachel, Ivy Joy and Joshua. They are the ones that I read their mommy's blogs.
Oh Andrea, your heart must be in your throat. Praying so hard for you all, for your brave warrior and for his entire medical team. <3
Sweetest videos ever. Seems like yesterday.
We are all holding him up in Prayer,good thoughts and love.
xoxo
Sending thoughts and prayers to your family and the team at Stanford. I saw something you posted on Facebook yesterday about how difficult this is for someone who is a planner and I totally can understand. So from one planner to another, I completely understand those feelings and can't imagine how difficult this is. ((Hugs)) We'll be thinking about you guys and watching for an update!!!
sending lots and lots of prayers to you. We were up at LCPH a few weeks ago for cardiac workups on both kids and I was thinking about Owen while I was there.
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