Tuesday, May 14, 2013

IVIG Round 11 Part 2

Owen and I slept great in the hospital last night, which is saying a lot when sleeping in a recliner.  Owen woke up early to his nurse administering IV Lasix, he was not happy.  We decided to get up and start our day.  We finally started the IVIG infusion at around 10pm, which was a bit crazy since we waited almost five hours for pharmacy to deliver his medicine.  It shouldn't take that long.. it was a bit extreme and the head of pharmacy will be notified.   
We watched more movies yesterday... Cars, Toy Story, Meet the Robsinsons in Spanish, Curious George, then finished the evening with a little Lion King in Spanish.  We shared a breakfast burrito for breakfast and it took Owen a while to make friends with the morning.  He was a bit grouchy. 
He perked up when Child Life came in for the morning.  We played Connect Four, built a train set, painted cars, and played SpongeBob Go Fish.  Then the book cart came by and Owen picked out an Ironman book to keep and after reading that a few times, he is ready to rest.  It's not even 11 and we are tired. ;)    I just closed the doors, curtains, blinds and shut down the lights.  Wreck It Ralph just started, so my boy is reclined in the recliner snuggled up with blankets. 
Maybe we'll get a little nap in before it's time to wrap things up.  Owen is scheduled to end IVIG around 4, but it looks like we may get out of here sooner.  It's been another pretty simple infusion and our last at PCH.  I still can't believe that in four short weeks we will be in Palo Alto.  It seems surreal, but we have such a busy four weeks ahead, I know time is going to fly by.  It always does.

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