Owen is done with his cath in record time.
Dr Perry just came in to talk to us. The news is as crummy as ever. Owen's pressures are still high and even a tad higher than last time. The gradient across his Tricuspid Valve is at around an 8 and this is causing his lung pressures to back up to an 18. Ideally.. you want those around 10 or 11.
Without that darn Tricuspid Valve gradient of an 8 (a zero would be ideal), his lung pressures would be perfect.
The Fontan would be entirely too risky to attempt and it sounds as though it will probably never be an option. As Owen grows, his pressures will only increase.
As he gets bigger, there may be another option to replace the tricuspid valve, but when we talked with Dr Hanley (surgeon) in July, it was decided that the TV replacement would not benefit him. The risk would be too great.
Owen has developed more collaterals (not surprising) but they decided to leave them alone since they just coiled six in July. He is not at risk of developing AVM's at this point, so that is positive!
Transplant is not an option at this time as he is doing great as a Glenn. It's just not going to last long term.
Owen is headed to recovery and I'll update more when we talk to his Cardiologist with further options. I'm hoping he has more tricks up his sleves!!
Thank you for all your continued prayers today!
Monday, March 12, 2012
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13 comments:
I'm so sorry about the bad news! I hope the future holds more options for him. We are praying for him!
What a day!
What a trooper!
And what fabulous parents you are to stay open and positive and solider on with your silllly boy!
Crummy is the right word for it. I'm so sorry the news isn't better, Andrea. But you are in the right place, with a fantastic team around you, and I'm sure they'll already be putting plans in place for your little superhero. Glad he wasn't away from you for long - hope he feels ok as he recovers. Still thinking of you lots and watching out for updates. xx
Hugs of Prayer for little Super Hero.
May the Cardiologist have a bagful of tricks up his sleeve and Owen have a speedy recovery from his Cath.
That just stinks. It must be so frustrating for you to know that all of the maxed out meds and oxygen therapy of the last few months were not bringing your hoped for outcome. I am sorry for that news. I hope that your conversations with his cardiology team at LPCH can give you some more input with where to go from here. Hugs and prayers for a speey recovery for Owen and lots of fun family time this week!
Owen is an amazing blessing for all of us every day he is with us. I know in my heart he has many more days to come. One day at a time sister. He is holding well as is, so HOORAY! All is well :) Our little superhero! I love you all.
I am sorry that you didn't hear the results you were looking for. I will be looking forward to hearing what your next plan of attack will be. Your family continues to be in my thoughts and prayers.
He is in my prayers. I am sorry you didn't get better news. I pray the doctors come up with some more options for him.
I am so sorry Andrea! I can't imagine how hard it must have been to hear that news yet you are still optimistic. You are amazing! I'll be praying for Owen that they will find more options for him as well.
So sorry for the bad news and we will prayer for him everyday. You all take care!
Crummy is the word. I am sorry you didn't get better news. Every time I see a picture of Owen and your family it puts a smile on my face. Even when things are crummy it is obvious how much you love each other and find the good in it. I too hope that the surgeon has a few tricks up his sleeve!
He is such a stud. We will continue praying.
I'm sorry I missed you guys. I was up there today for a meeting. We will be there Thursday though for M so hopefully we can see you.
Lots of love,
V
Thinking of you with Hope...
~ Chris A ~
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