Ever since I started blogging, we have become friends with some amazing heart families. No one can fully understand what it's like to live the day to day life with a heart babe. You can tell others about the medications, the tube feeds, the oxygen saturations and the fear of losing your child, but there is no way for them to fully understand it. It's been a huge blessing to find support from other heart moms!
With that said.. we LOVE to get the chance to actually meet our many heart friends in person. Brytten emailed me last week and said she would be in Arizona this week and so we planned to get together for lunch yesterday. Tegan and Owen have the same heart condition and are both doing good considering. We had a good chat and the boys waved at eachother, gave knuckle bumps and high fives.
Thanks for the visit Brytten, we had a great time meeting you and the
Incredible T!
5 comments:
Glad you enjoyed the visit with your heart friends. I agree....no one understands what we go through like another heart family. It does help to get through the rough times on this journey having someone who fully understands to chat with.
Aww, how fun! I hope to meet some of you all in person too - some day!
So fun. It is always soo good to meet other families and their amazing kids.
I am a new follower...as we aren't dealing with the same illness/disease we are dealing with the same heart ache and pain. My daughter has Cystic Fibrosis with addition medical issues that make her very severe. We are currently in the hospital, this will probably be about a 3 week stay. We do this quite often. I am always looking for more people to chat with and share stories and just someone who can "understand"
Feel free to stop by our blog, or email me!
kmessineo@tmail.com
www.skyesthelimit.blogspot.com
I agree! I was just down in Arizona last week (we were down for a DRI convention) and was planning on getting in touch with you. However, it was during the time that you had gone to California. Bummer. Maybe next time.
---Allison
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