It has been a quiet weekend around here and we haven't had much to blog about. Owen and I are finishing up season 2 of Jane the Virgin (which he loves) on Netflix. I started watching Friday Night Lights which I love and is right up my ally. If you have any good Netflix series for me/us to watch to pass the time.. I'm all ears. I watched Gossip Girl for the five weeks that we were in the CVICU. I finished Gilmore Girls at home with Kam. Anything to help pass the time right?
Owen and I did a lot of walking this weekend. I took a few shuttle trips back and forth to the RMH getting stuff faxed, mailed and caught up on Laundry. We are both feeling a bit homesick and Owen let the tears flow yesterday. We are coming up on 3 months inpatient and on isolation. If anyone can do this... we can!
Everyone is thrilled at how well Owen continues to do. I have him up to almost half of his goal gtube intake. I'm trying to convince them to stop the TPN soon. We have slowly chipped away on it this weekend. He is gaining weight so rapidly and I think he will feel more hungry and tolerate more gtube feeds if he wasn't getting so much IV nutrtiion. Labs today looked wonderful. His WBC dropped again and we are still waiting for his ANC. He is still very tachy with a high HR of 150-160. Other than those things....we are hanging steady.
Logi has been keeping Auntie Sussy busy. She has been amazing taking him places during the day so he doesn't miss his Sis and cousins. She attempted the playplace at the mall.. which he loved!
And obsessively used the hand sanitizer every few minutes... because we taught him well!! :)
Kam is loving school this year! She has some great teachers and challenging classes. We are still searching for the right car for her and she should have one by next weekend. I am going to be so nervous with her driving to school everyday but excited about her new freedom!
Larissa took the kids to The Escape Room this weekend and they had a great time. Looks like they #NailedIt and Survived!
This is my shuttle stop out front of the RMH. This clown bench takes me back to my childhood. Remember the old McDonalds' playgrounds with the metal bars around the Hamburglers hat? I'm so grateful for the RMH at Stanford.. I don't know what I would do without it here.
We are all mising eachother. This little guy has been finding my picture and crying big tears. He misses his mom. :( Someday soon we will all be together again. Life is hard but we are so fortunate. We can do this!!! Staying positive and pushing forward.
Why does my 19 month old baby look so huge?? Stop growing!!!
10 comments:
Orange is the new black! Not one for Owen but it is awesome! Get past the first 2-3 episodes so you get the whole story line xxx hang in there you guys will continue to do great xxx
Parenthood. Also not for Owen probably but not nearly as raunchy as Orange. He might like Bluebloods with Tom Selleck but there are some themes he may be too young for. At least it's about a family. I also loved Nashville but again probably just for you. It's on Netflix
Hi long time reader, first time commenting, as far as Netflix for you The West Wing, Parks and Rec, and Better off Ted are great. Owen may be old enough for Leverage, Eureka is amazing, Stardust, Bill Nye, and Boy Meets World is pretty affordable on Amazon, there is always Pokemon Index League. Also just so you know TPN doesn't take away hunger, I'm 100% TPN dependent and have been for 2.5 years and am still hungry.
I never comment on your blog, but check it faithfully. Your family is such an inspiration to me! My heart baby is also 8. I pray for you and know that Heavenly Father is very mindful of your whole family. Thank you for your example of faith and endurance. Your family is truly special!
Not for Owen, but I also agree on Parenthood. I'm in the middle of it myself. We have also loved Longmire. My sons 8 & 12 love The Andy Griffith show. They think it's so funny. Phineas and Ferb is also on there.
Sending love and prayers from Utah.
Camille Hood
I never comment on your blog, but check it faithfully. Your family is such an inspiration to me! My heart baby is also 8. I pray for you and know that Heavenly Father is very mindful of your whole family. Thank you for your example of faith and endurance. Your family is truly special!
Not for Owen, but I also agree on Parenthood. I'm in the middle of it myself. We have also loved Longmire. My sons 8 & 12 love The Andy Griffith show. They think it's so funny. Phineas and Ferb is also on there.
Sending love and prayers from Utah.
Camille Hood
Not for Owen, but we just finished Stranger Things on netflix. It was so good! We are hoping for a second season
Breaking the Magicians Code is interesting though spoils the secrets of the tricks.
I also love property Brothers and Fixer Upper.
Praying for your family.
http://www.thehealthsite.com/diseases-conditions/hand-sanitizers-9-reasons-you-should-think-before-using-them/
Good old soap and water is best
We are hurting our kids with too much hand sanitizer
read above link
Can't imagine how you two hang in there but I know in life you do what you have to do. I am so glad that God has family in your life to take care of your baby. Continuing to pray for all of you. Praying that the perfect heart is coming soon
Not for Owen- but the Goodwife is awesome, Glee ( might be ok in some episodes for Owen), Veronica Mars, Rules of Engagement ( 100% not for Owen)
Just add magic is a series my 8 year old loved and so did I. We are waiting for season 2
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